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Surgery...How do you decide?
Tue, 09/16/2008 - 09:58I know opting for surgery is a personal decision, but I just want to explore other's experiences...
My son, 12yrs, has partial seizures, some Simple, some Complex. He's on two meds, both causing cognitive side effects, which of course makes learning difficult, plus makes things difficult for him socially. We've never gotten full control of his seizures... Sometimes they come daily, sometimes every two weeks. We're at the end of the Medications options... No more to try.
Do we just live with partial seizure control, or do we continue to strive for full control with Surgery. It seems so scary to me... I just want to do whats best for my son.
If you've had the surgery, please share your experience, OR if you've considered surgery, but opted against it.
Thank you so much, Val
Re: Surgery...How do you decide?
Submitted by bloxsom on Wed, 2008-09-17 - 15:12
right now me and my husband are going through the same thing decideing what woul be right for my 5 year old daughter.on september 29th she is going in to the hospital for a 2 week eeg and other testing to see if she is a canidate for the brain surgery or possibally there is a stimulant implant that they put that sends electrodes to the brain.it's very scary we don't know what to do.she has been having quite a few seizures last week getting on the bus she had a seizure she never made it up the first step so i went over picked her up and brought her home and called the doctor and now the doctors don't want her to go to school until after all this testing.i'm hoping in the next month or so we get some answers and the seizures start to get better and she come off of some of her medicine she takes 4 different meds 2times a day for eoilepsey and 1 for adhd.she has learning problems speech problems and behavoir problems i'm if and when she gets one of the surgeries that all of that will grt better.so believe me i know what you are going through and it is so hard.i cry all the time and just hope that god leads us in the right direction.brenda god bless and i believe what ever happens is the way things are suppose to be but beleive me i am scared to death.my e-mail if you want to talk is sbtn1260@aol.com take care and i hope everything works out for you