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Vagus Nerve Stimulator
Sat, 07/21/2007 - 13:56Comments
Re: epi doc want me to get vns
Submitted by userjake on Wed, 2008-01-30 - 23:10
I have the same type. I have been on all diffrent types of meds for years and years. I really haven't had side effects from any of the diffrent meds but let me tell you be careful on the topamax I was on for about 2 years and then started to get the side effects. Which 2 doctors have told me that it was normal for that to happen. I had gotten tingling and numbness in my feet/toes and fingers and also had it on my outside thigh. I would never use topamax again. I do have a vns and have used Keppra and Lamictal. I have read that they are 2 of the best meds out there. But I guess it all depends on the individual.
Good Luck.
I have the same type. I have been on all diffrent types of meds for years and years. I really haven't had side effects from any of the diffrent meds but let me tell you be careful on the topamax I was on for about 2 years and then started to get the side effects. Which 2 doctors have told me that it was normal for that to happen. I had gotten tingling and numbness in my feet/toes and fingers and also had it on my outside thigh. I would never use topamax again. I do have a vns and have used Keppra and Lamictal. I have read that they are 2 of the best meds out there. But I guess it all depends on the individual.
Good Luck.
Re: epi doc want me to get vns
Submitted by desert_rose73 on Fri, 2008-02-15 - 09:50
I have both Patial and generalized szs adn am doing VERY well with the VNS and my szs have improved GREATLY.
Neuro is impressed iwth response adn the quickness with hos it has happened. I respond well to electrical therpay of an kind. I used to have TENS unit that I used for my Migraines and TMJ jaw pain but no more since I now havethet VNS.
I have Grand Mals, Petit Mals, Drop Attacks, Simple adn Complex Partial szs.
Works very well and I have had good luck with it.
nancy
I have both Patial and generalized szs adn am doing VERY well with the VNS and my szs have improved GREATLY.
Neuro is impressed iwth response adn the quickness with hos it has happened. I respond well to electrical therpay of an kind. I used to have TENS unit that I used for my Migraines and TMJ jaw pain but no more since I now havethet VNS.
I have Grand Mals, Petit Mals, Drop Attacks, Simple adn Complex Partial szs.
Works very well and I have had good luck with it.
nancy
Vagus Nerve Stimuator
Submitted by adtm1995 on Sat, 2008-01-12 - 16:25
Hi, My name is Diana I live in Deer Park, NY.
I had my VNS put in on 4/13/04. Ihad high hopes but, of course I had to be in the rare section and its does nothing for me. My seizure come both the right and left temporal lobe so we knew it was a long shot. I was first schedule to have one of my temporal lobes removed but we found that the seizure were on bothe sides so that was out of the question and then I had the VNS put in. I spoke to one or two other patience that there seizures had stopped or slowed down alot. Like I always tease my husband and say I quess I just had to be so special so it didn' want to work for me. Well best of luck and keep me up to date on how things are working out for you.
Hi, My name is Diana I live in Deer Park, NY.
I had my VNS put in on 4/13/04. Ihad high hopes but, of course I had to be in the rare section and its does nothing for me. My seizure come both the right and left temporal lobe so we knew it was a long shot. I was first schedule to have one of my temporal lobes removed but we found that the seizure were on bothe sides so that was out of the question and then I had the VNS put in. I spoke to one or two other patience that there seizures had stopped or slowed down alot. Like I always tease my husband and say I quess I just had to be so special so it didn' want to work for me. Well best of luck and keep me up to date on how things are working out for you.