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VNS clearly not for everyone!
Tue, 04/19/2005 - 18:10Comments
RE: RE: RE: RE: VNS clearly not for everyone!
Submitted by Yakota on Sat, 2005-04-16 - 11:17
RE: RE: RE: RE: RE: VNS clearly not for everyone!
Submitted by 38benny on Sun, 2005-04-17 - 09:57
Hello - The vns is on every five minutes for thirty seconds. I was implanted in 2001. Its been turned on the whole time. I went through TOO MANY drugs <some that made me nasty> before my dr. told me about it - I don't usually reach for it a lot - THIS WEEK IS AN EXCEPTION TO THE RULE! Its wonderful to have it on me! Until I got on this site I didn't know anyone else with it! Any other questions?
Sorry its been awhile since I got back to you I have been REALLY out of it. For some reason the seizures have come on morning noon and night. I'm getting the visions that I used to get as a kid <I'm 32> and I haven't had them since I was in high school so its extremely bizzare. But I have been sick with other things too - so I figure thats probably the reason... So far today haven't had ANY <KNOCK ON WOOD>... lets keep it that way! My tongue kills from biting it!
Talk later
JoAnne
Hello - The vns is on every five minutes for thirty seconds. I was implanted in 2001. Its been turned on the whole time. I went through TOO MANY drugs <some that made me nasty> before my dr. told me about it - I don't usually reach for it a lot - THIS WEEK IS AN EXCEPTION TO THE RULE! Its wonderful to have it on me! Until I got on this site I didn't know anyone else with it! Any other questions?
Sorry its been awhile since I got back to you I have been REALLY out of it. For some reason the seizures have come on morning noon and night. I'm getting the visions that I used to get as a kid <I'm 32> and I haven't had them since I was in high school so its extremely bizzare. But I have been sick with other things too - so I figure thats probably the reason... So far today haven't had ANY <KNOCK ON WOOD>... lets keep it that way! My tongue kills from biting it!
Talk later
JoAnne
RE: RE: RE: VNS clearly not for everyone!
Submitted by 38benny on Fri, 2005-04-15 - 21:13
HEY - This is JoAnne - aka 38Benny - Yes my VNS is turned on and I'm still on Topamax 400mgs in the morning 400mgs at night... It works really well for me... ESPECIALLY THIS WEEK... I went over a month without any problems but now they are coming up again constantly and the VNS is stopping them - I just get exhausted after the seizure/ or using it - I don't know which... But hey I'd much rather them stop than continue to torment me...
JoAnne
HEY - This is JoAnne - aka 38Benny - Yes my VNS is turned on and I'm still on Topamax 400mgs in the morning 400mgs at night... It works really well for me... ESPECIALLY THIS WEEK... I went over a month without any problems but now they are coming up again constantly and the VNS is stopping them - I just get exhausted after the seizure/ or using it - I don't know which... But hey I'd much rather them stop than continue to torment me...
JoAnne