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VNS
Fri, 07/30/2004 - 14:14Topic: Surgery and Devices
DOES ANYONE HAD ANY BAD EXPERIENCES WITH THE VNS?I AM PLANNING ON HAVING IT DONE AROUND MARCH 16TH IN INDIANAPOLIS,INDIANA AT ST.VINCENTSHOSPITAL.MY SURGEON CLAIMS HE DOES AT LEAST 2 AWEEK.I WOULD GLADLY LISTEN TO ANY ADVICE OR IN-FO.THANKS
Comments
Re: Re: VNS
Submitted by tbrdman on Tue, 2006-08-08 - 15:17
Can you give me some info about it malfunctioned for your brother? What were his symptoms? I had to have mine turned off because I suspected it was causing problems. I have also found out that it may have been turned up in current output too soon. I want to find out as much as I can from others' symptoms and experiences. Thanks for the input and good luck!
Re: Re: Re: VNS
Submitted by m.campbell on Tue, 2006-08-08 - 16:58
IVE HAD MY VNS IN SINCE 92 IT WORKS WELL FOR ME WHEN I FEEL THEM COMMING ON IT STOPS THEM I WOULD SAY 90 PERCENT OF THE TIME AT THE BEGINNG IT WAS HARD TO GET USE TO BUT YOU DO NOW I DONT EVEN KNOW I HAVE IT UNLESS I USE THE MAGNET MY NICE HAS ONE ALSO BUT IT HARD TO TELL IF WORKS FOR HER AS SHE IS A TOTAL CARE PERSON .BUT I WILL SWEAR TO IT HELPING ME. MIKE
Re: VNS
Submitted by lab138 on Tue, 2006-08-08 - 14:22
I had the VNS implant along side my brother in 1999. It does not work for me on a everyday basis, however it does cut down on the severity of my seizures when someone is home or wherever I am to use the magnet. My brother on the other hand it made his seizures worse. He had to get the implant removed, not just because it did not work but also because it malfunctioned. My brother and myself were the first brother and sister to recieve it in the state of MD and we were guinney pigs because supposedly our seizures aren't bad. Wll anyway I hope that this comment was some help. Laura