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Post surgery question

Hi all! Quick back ground I was diagnosed in 2008 complex partials with a grandmal tendency. I had my rphone gut hippocampus removed in sept of 2010 and have been seizure free! The last couple of months I have had weird seizure like feelings and requested a eeg . My eeg came back neg for seizures but shows some slowing on right side where surgery was dr said we will discuss options at appt next week. Any thoughts on what to expect?

Comments

Sorry about typos it should

Sorry about typos it should read right hippocampus 

The right side slowing is

The right side slowing is expected after right sided surgery. I guess it depends on whether your sensations are auras or just weird feelings that follow the path of your old seizures but go nowhere. Ideally, you would get video EEG monitoring and have one of these weird feelings happen so you could see what the EEG does when you actually have the feeling. That might be hard to catch if you have them infrequently. Another possibility would be to go on a medication to see if it stops the weird feeling. You are probably going to have to figure out how much these feelings bother you and how much it is worth investigating. I would keep a seizure diary of these feelings if you are not already. I hope it turns out to be nothing to worry about for you!

Same thing for me, except I

Same thing for me, except I did not have gran mals.  I had my surgery in 2008 and still hd some issues until I changed my diet to a gluten free one on the suggestion from some one here when it was still Epilepsy Foundation.org.  I still have auras and I am maxed out on three different medications.  My neuro sinally sent me to UCLA where I had my right temporal lobe resection done and they put through a VEEG.  What they saw was hard for them to diagnose because the seizures went so quick, I think the longest one lasted about 8 seconds and I drooled all over myself.  Now they are planning on me going in for a SEEG, intra-cranial EEG.  You know, sticking the probes into my brain. I will be in the hospital for at least a week like that.  Before all that I will have to get a MEG,,,,,, which I have never heard of before.

Same thing for me, except I

Same thing for me, except I did not have gran mals.  I had my surgery in 2008 and still hd some issues until I changed my diet to a gluten free one on the suggestion from some one here when it was still Epilepsy Foundation.org.  I still have auras and I am maxed out on three different medications.  My neuro sinally sent me to UCLA where I had my right temporal lobe resection done and they put through a VEEG.  What they saw was hard for them to diagnose because the seizures went so quick, I think the longest one lasted about 8 seconds and I drooled all over myself.  Now they are planning on me going in for a SEEG, intra-cranial EEG.  You know, sticking the probes into my brain. I will be in the hospital for at least a week like that.  Before all that I will have to get a MEG,,,,,, which I have never heard of before.

Oh! And they saw a decline of

Oh! And they saw a decline of activity on my right side again, just further back from the temporal lobe. That's kinda scary.Later,Racer

I need help from people who

I need help from people who have had a right temporal lobectomy then experienced horrible depression afterwards.  

Slowing shows on my EEG where

Slowing shows on my EEG where my surgery was and dr says it likely always will. As long as no "spikes" show they say no szs.

Could be anything man.  I

Could be anything man.  I have been having auras for the past 8 years post surgery and I am now looking to be going back in for more surgery.  First was my right front temporal lobe resection and most of my right Hippocampus.  Now they think that it may have "moved" more towards the rear and will have to do another resection.  When I went in for my VEEG in January, I lit up like a Christmas tree within the day they took me off my meds.  I didn't realize how dependent my brain had become on the medications!  Scary.Later,Racer

Cindy -- I had RTL resection

Cindy -- I had RTL resection 10/31/2017 and no seizures as of 5/7/2018, and feel like my epilepsy is gone, which seems impossible to confirm. Meeting w neuro in late June.  Meanwhile, never been this depressed in my life because still not driving, and wife cannot drive, so we have to do UBER and taxi almost everywhere. -- John

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