Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Tuesday, May 23, 2023
Pursuing My Goals Despite Epilepsy
I started having absence seizures when I was 9 years old. They came out of nowhere. When you are a kid, having to go for weeklong medical testing and...
Thursday, May 11, 2023
Finding Hope Through Music
I was born with a 14:22 chromosomal translocation, of which little is known, but it may contribute to my epilepsy. When I was a toddler, I had several...
Thursday, April 13, 2023
My Journey with Epilepsy
My life with epilepsy has been very interesting. I was not diagnosed until I was 20 years old and, I had never heard of the condition. I was lost. I...
Thursday, March 30, 2023
From Donuts to "Epilectra"
Every 20 years or so, I’m diagnosed with a different autoimmune disorder. At 8, it was Hashimoto’s Disease (hypothyroidism). At 30, type 1 diabetes...
Wednesday, March 22, 2023
Aiming High with Epilepsy Awareness in Arkansas
My name is Sadie Kirk, and I am a 17-year-old senior at Parkview Arts and Science Magnet High School in Little Rock, Arkansas. I am a 2023 Girl Scouts...
Don't Give Up
I was diagnosed with epilepsy in 5th grade. The onset is still a mystery, but it was possibly from a head injury. However, that was never really...
Epilepsy Has Given Me a Greater Purpose
Boom! Lightning struck inside my brain on Sunday, October 10, 2021, at 10:38 a.m. The forecast predicted high electrical neuron activity, but I was...
Spreading Awareness Through Sharing My Story
My epilepsy journey is not one I chose or one I could have ever imagined, but it is the path that was chosen for me. Epilepsy is like a shadow, it...
Prioritizing Mental Health With Epilepsy
For as long as I can recall, I was experiencing what I described as "dizzy spells." As many people who have experienced absence seizures know, they're...
Motivated To Keep Moving
I have suffered from JME juvenile myoclonic epilepsy (JME) since I was 13 years old, which caused me to lose consciousness and control of my bladder...