Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Friday, September 23, 2022
Epilepsy Makes Us Stronger
My name is Carrie. I am a 23-year-old living with epilepsy. I had my first seizure on November 16, 2015, when I was 16 years old. I came home from...
Thursday, September 15, 2022
Seizures Have Not Stopped Me
I started having myoclonic seizures around 14 years old. I didn't know what they were at the time, and I figured they would go away on their own if I...
My Story of Resilience
For me, epilepsy awareness is not simply learning about treatment, triggers, and statistics. It is also about the gritty experiences of individuals...
How I Live a Happy and Healthy Life With Epilepsy
My name is Sophia, and I was diagnosed with juvenile myoclonic epilepsy (JME) in June 2018, when I had a tonic-clonic seizure at 16 years old. For...
Epilepsy Changed My Life, but I Won’t Stop Fighting
When I was 18 years old and in the first half of my freshman year of college, I got a concussion that changed my life. It was a minor one, but...
You’re Not Alone
I’ve had seizures since I was 5 years old, but they were not consistent. Some of the first seizures would happen at my friend’s houses. I remember...
I Have Epilepsy, but It Doesn’t Have Me
I was diagnosed with epilepsy when I was 25 years old. I had a new job in a new city and my own apartment. I was hospitalized and experienced an...
Leave No Stone Unturned
I had trouble maintaining friendships or being “normal” from an early age. My first tonic-clonic seizure happened when I was 9 years old, and it was...
Perspective Is Key
My life with epilepsy began in 2016. I was diagnosed with juvenile myoclonic epilepsy (JME) after having a serious tonic-clonic seizure. As the years...