Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Tuesday, November 15, 2022
Finding Support Through Community
I was diagnosed with epilepsy almost a year ago. I was 18 at the time and had my first tonic-clonic seizure. It has drastically changed my life in so...
Thursday, November 10, 2022
My Seizures Are Part of Me
My journey began when I was 16 years old and officially diagnosed with epilepsy. In the beginning, I was in denial even though I had seizures every...
Connecting Epilepsy Families through Theater
Our family has been affected by epilepsy since my son had his first atypical tonic-clonic seizure when he was 6 months old. He was eventually...
Monday, October 31, 2022
Sharing My Journey as an Epilepsy Lifestyle Advocate
Four years ago, my life changed forever. I was working as an emergency room nurse during a night shift when I suddenly felt a little lightheaded and...
Friday, September 23, 2022
Epilepsy Makes Us Stronger
My name is Carrie. I am a 23-year-old living with epilepsy. I had my first seizure on November 16, 2015, when I was 16 years old. I came home from...
Thursday, September 15, 2022
Seizures Have Not Stopped Me
I started having myoclonic seizures around 14 years old. I didn't know what they were at the time, and I figured they would go away on their own if I...
Honoring the Memory of Kate
“What is the matter with Kate?” There was never an easy answer to that question. Our daughter Kate had her first tonic-clonic seizure unexpectedly in...
How I Live a Happy and Healthy Life With Epilepsy
My name is Sophia, and I was diagnosed with juvenile myoclonic epilepsy (JME) in June 2018, when I had a tonic-clonic seizure at 16 years old. For...
Epilepsy Changed My Life, but I Won’t Stop Fighting
When I was 18 years old and in the first half of my freshman year of college, I got a concussion that changed my life. It was a minor one, but...
You’re Not Alone
I’ve had seizures since I was 5 years old, but they were not consistent. Some of the first seizures would happen at my friend’s houses. I remember...