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Myoclonic Jerks
Wed, 11/23/2005 - 04:28Topic: Medication Issues
I have Myoclonic Jerks. I developed them at the age of 43. I"ve been started, very slowly, on 3 different kinds of medications: Trileptal, Klonopin, and Neurontin and the Myoclonic Jerks still are not completely under control. I have times when I experience confusion. I don't know who I am or where I am or what I am doing. It lasts only about 50 seconds and then I'm really spaced out for the rest of the day. These come in clusters. I've not had these since I got settled on the most recent medication: Neurontin.
Does anyone else have experience with any of this or the Myoclonic Jerks in particular?
Comments
Re: Re: Myoclonic Jerks
Submitted by gretchen1 on Wed, 2005-11-23 - 22:47
When I first got jerks I didn't know what they were. I called my doctor and complained "I'm having involuntary muscle movement". He said - huh. So I posted it and the FORUM said - look up jerks. I called my doctor back and said - think I have jerks? He said - sure, I knew that. Ummmmmm......I don't go to him any more.
I tend to get them Barbie when I'm falling asleep, after a SE topic sz and just because. The ones I hate the most is when my head is thrown back or in my whole torso. I have "equal opportunity jerks". They can be anywhere. Like sometimes just finger flipping.
I do wonder if my "twitchies" are a kind of jerk. They told me but I forgot but with those? I get this anxious, feeling of doom feelings to but don't with jerks.
I'm so sorry the other poster faces discrimination. I've seen that ugly face. More I've seen the compassionate ones though. Interesting Japan has discriminatory feelings. I've read discrimination is born of fear - Martin Luther King Jr. I believe it.
Want to join my club - The Jerkettes? (kind of like The Dreaded Dropper's Club). lol
Gretchen
Re: Re: Re: Myoclonic Jerks
Submitted by txrhb1 on Wed, 2005-11-23 - 22:54
LOL !! I would love to join your club Gretchen !!
I was so shocked when my arm flew up this morning - jiminy cricket !! Was happy I didn't have a cup of hot coffee in my hand !! I have had the "tremors" in my right side for about 5 years now, but the jerks were a shock. sometimes, my right leg tremors so much that the grandkids ask for a "horsey-ride" !!
love ya !!
((( hugs ))),
Barbie
Re: Myoclonic Jerks
Submitted by caboose on Wed, 2005-11-23 - 22:16
Yup and what a pain in the butt! I've had them since before I started having the big ones. I have them during aerobics all the time and it messes up my routine. People think I'm clumsy, (there is severe disability discrimination in the part of Japan I live in so only a select few know what they really are). They are worst right before my big guys and serve as a warning for me to take it easy, lay down. They are through my whole body, but start in my arms. When the legs go, it means trouble on the home front for sure. It's one of the major reasons I don't feel comfortable going into surgery as a profession, :( My doc says that they should be controlled with my Lamictal and if they are not, I haven't reached the required level. mmm... I find that having Skittles close to me clears them up sometimes as it is related to my glucose level... or perhaps my mood - Skittles make me happy after all. Taste the rainbow. Caboose.