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the after life of temporal lobe sururgery
Sun, 01/08/2006 - 15:31Topic: Surgery and Devices
I had my right temporal removed in Sept of 1994
I actually was aginniy pig for ateaching hospital in Gainesville,fl.I dont know about the rest of you, but my first two years after surgery where HELL! I was amentel case,I had to betaught how to be social around people again and how not to let people make me like something that Im not.A friend taught me to drive again,I was like achlid learnig how to take steps all over again.Its been 11 years and I stll take more medicanes now than I did when I had surgery.
I take Topamax,Lexapro,and Ativn.I have both short and long term memory loss,alearning dis.,simple-partial seizures,anxiety dis./
mood-swings.But as time as gone by,my learning has improved alot.Can anyone relate?terrij
Comments
Re: Hi Teri... re:I have left
Submitted by pinkangel_82 on Thu, 2006-03-09 - 15:00
Hi Sol
Thanks for your information above. It has given me a bit more knowledge of what never occurred to me before. What seems to be on my mind alot these days is once I have my Wada Test on 21 March and the results show that I am a candidate for surgery - I just don't know what I will say or do. I am concerned about the recovery time needed after surgery and what help I would need at home? I know you are going through this right now and I just wonder how you manage? I live with my parents who are pensioners and I am worried if it may be too much work for them having me home after my surgery if I am a candidate. Were you having all these concerns before your surgery?
Best Wishes and Take Care
Teri
Re: Re: Hi Teri... re:I have left
Submitted by lisam11463 on Mon, 2006-03-13 - 09:13
Hi Teri!
Please don't be too concerned about your recovery time being too much work for your parents. You're going to be a little slow perhaps after surgery, but you should be able to do things such as bathing yourself, dressing yourself, etc.
I had temporal lobe surgery done over eleven years ago, and I do not regret it one single bit. I have been completely seizure-free ever since my surgery thanks to the wonderful doctors in Syracuse, New York at SUNY Upstate Health Science Center. I would do it all over again if I had to....so long as I had the same doctors working my case.
One small thing if you do have the surgery done....You want to make sure that after you have the surgery done that you DO NOT do any heavy lifting or bending over for at least a month. This is CRUCIAL and very important. While your head is healing, you do not want to do these things because it MIGHT cause some leakage of brain fluids or might aggravate your incision. This is what I was told over 11 yrs ago, I don't know for sure if these restrictions still hold today.
Best of luck, and please let me know if you do have the surgery done?
Lisa-Marie LisaM11463@aol.com
"Changing the misconceptions society has about epilepsy,
by educating one person at a time"....Lisa-Marie Kinsman
Hi Teri... re:I have left
Submitted by solis on Thu, 2006-03-09 - 13:23
Hi Teri... re:I have left temporal lobe epilepsy where they wish to remove scar tissue from when I had a febrile convulsion at eighteen months old I just finished having left temporal lobe surgery in January and my language isn't affected..except that immediately after surgery I sometimesforget words which is a 'forget' issue. Like myself, you developed epilepsy at a young age. And, when that happens it's common for the right side of the brain to take over the left side's duties. When I had the Wada test, I had np with my language on either side (they give you a few things to recognize &name - no big deal) which proved what the epileptologist had suspected was the result. So no worries, ok... I'm betting you'll be a candidate. I began seizures at age three..so your brain had even earlier to alter its duties from one side to the other. Best wishes.. ~sol PS: The physician that operated teaches neurology at the university in Alberta and only ever operates on epileptology (seizure) patients.