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the after life of temporal lobe sururgery

Sun, 01/08/2006 - 15:31
I had my right temporal removed in Sept of 1994 I actually was aginniy pig for ateaching hospital in Gainesville,fl.I dont know about the rest of you, but my first two years after surgery where HELL! I was amentel case,I had to betaught how to be social around people again and how not to let people make me like something that Im not.A friend taught me to drive again,I was like achlid learnig how to take steps all over again.Its been 11 years and I stll take more medicanes now than I did when I had surgery. I take Topamax,Lexapro,and Ativn.I have both short and long term memory loss,alearning dis.,simple-partial seizures,anxiety dis./ mood-swings.But as time as gone by,my learning has improved alot.Can anyone relate?terrij

Comments

Re: Re: Re: Re: Re: Re: the after life of temporal lobe sururger

Submitted by epilepsy on Sun, 2006-07-16 - 10:19
Hi Phoebe, I had a Right Anterior Temporal Lobectomy with right Amygdala resection in Feb, 2005. Looks like ur one r the same as mine. I had benign ganglioglioma in my right temporal lobe. I stipped medicine in March, 2006 and still seizure free since surgery. I am worried if it grow again...though dr. said he removed the whole tumor. I have a question to you. Do you face any problem in absence of your right amygdala(i think it's removed in your case)? What are the changes you noticed on you after the surgery or after the first year of your surgery? I would appreciate of you kindly email me at m_fischer7@yahoo.com Thank you and stay fine. Pat

Re: the after life of temporal lobe sururgery

Submitted by HippyRay69 on Thu, 2006-03-09 - 11:12
hiya terri my god you poor thing i so feel your pain and wish i could do something for you, i do understad it but haven't had the experiences you have it seems i had in january 2003 my first surgery it was a left temproal lobe surgery, i had it @ the cleveland clinic in weston florida (fort lauderdale area) my first surgery wasnt a pleasent experience the guy who cut me, left me with a knot on the side of my had and said to me lets wait a year before we fix it, 6 months went by my nero doc said ok enough is enough he wasnt very happy with the surgon @ that point, they sent me to cleveland oh in june 2003, had 2nd op, what the doc discovoreed was an infection on the left bone flap, which was removed and 4 months went by, i went back to cleveland oh for my 3rd and final surgery the doc replaced the boneflap with a hard plastic i have since then had one sezuire which was my own fault ( istoped w/o consulting doc taking meds) that was febuary 2003 when i found my nero doci was taking limicatal,tegrotol xr,xanax,phenobarbitiol & valuim to( xanax valuim and phenobarb, not a good combination) today i take 200 mg of limicatal once a day my doc got me to that within 9 months of my first visit to him which was in the begining of 2000 http://sck.clevelandclinic.org/florida/physicians/physicians.asp?location=weston&location=naples&department=24 go to the second doctor on this lsit, this is my doctor who is a epilepse and sleep disorder specialist this amn has been a god send to me if you need surgery or feel you may be a canadtie and have medicaid/medicare or other insurance this guy is the one to see his name is eduardo locatelli the phone number to his office is 954-659-5000' 954-689-5000 or 1-877-463-2010 and doctor william bingiman who is in cleveland oh and is the top epilepsey sugron in the us or atleast 1 of em this amn does over 400 of these surgeries a year the number to the cleveland clinic in cleveland is 1-800-223-2273 you so cannot go wrong with these doctors the cleveland clinic in both florida and cleveland oh is not just a hospital but also has every doctor you need (private offices) in the hopsital so no need to go to 100 different locations to see your doctors!!! the cleveland clinic is oh is so alrge they literally have their own police force theres a intercontinentil hotel on the campus u anme it the one in weston fla is only 1 build opposed to like 15-25 in cleveland oh the one is weston is very nice to, carpeted floors, nice comfoirtable couches a starbcks in the lobby etc..... the doctors have a great bedisde manor via the vcleveland clinic i have had my brain surgeries also my gall bladder surgery was done there i spent a week on the epilepsey monitoring usit there had mywada test there etc.... they have done my mothers gastric bypass grandparents cateric surgeries uncles ear surgery etc..... so i have alot of faith in these ppl if anyone ahs any questions feel free to contact me @ hippyray69@gmail.com for email hippyray69@hotmail.com for msn hippyray69@yahoo for yahoo messenger i do not see email at any of my addresses outside of gmail i wish one and all only the best god (as you understand him/her/it) bless you http://www.hippyshouseofpoetry.bravehost.com

Re: the after life of temporal lobe sururgery

Submitted by HippyRay69 on Wed, 2008-03-05 - 02:36

Update On Doctor Eduardo locatelli

He Has Relocated His practice & Opened His own office

His New Office Number Is

954-414-9750

I have been a patient of his since 2000

in the last year i have relocated from florida to tennessee and for the second time am flying down to florida to see him i trust him with my life, he knows my histroy and once you find a doctor whom takes time out to hear your voice & give you the feedback you not necessarily wnat but need you should stick with him i have a good established relation ship with my doctor there is none better then this man if you need a good top notch doctor as i do i wont see some half-witt doctor ina  small town that got his education  from a cracker jack box

here is the link to his website

http://www.floridaneuroscience.com/

Update On Doctor Eduardo locatelli

He Has Relocated His practice & Opened His own office

His New Office Number Is

954-414-9750

I have been a patient of his since 2000

in the last year i have relocated from florida to tennessee and for the second time am flying down to florida to see him i trust him with my life, he knows my histroy and once you find a doctor whom takes time out to hear your voice & give you the feedback you not necessarily wnat but need you should stick with him i have a good established relation ship with my doctor there is none better then this man if you need a good top notch doctor as i do i wont see some half-witt doctor ina  small town that got his education  from a cracker jack box

here is the link to his website

http://www.floridaneuroscience.com/

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