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Complications from surgery for epilepsy

Fri, 01/11/2008 - 08:08
Hi, I had surgery for epilepsy September 2006. I am now having problems with the nerve repaire emotionaly and physicaly and I want to know if anybody else is going threw this or has gone threw this. It would be nice to hear from others to know how to deal with it and someone who understands.

Comments

Re: nerve repaire

Submitted by VSimba08 on Mon, 2008-03-10 - 04:16

I am sorry for your unsuccessfull experience.  Maybe you can look up my Doctor's who performed my surgery in San Antonio, Texas.  His name is Dr./Professor Dennis Vollmer.  I believe he is now located in Houston, Texas.

I asked many questions beforehand as well as many tests run on me, ei. WADA, multiple MRI's, mapping of the brain (Hippocempus), EEG's and I did my research.  What helped me decide is that I am not married nor have any children, so if there was a serious risk of complications or death (As with any surgery), I wouldn't leave anyone parentless or pass on my epilepsy gene.

I can always adopt one day if I get married.

Go with what your heart feels is best for you as well as keeping prayer active within your family and friends.

Prayer works, it worked for me!!

God Bless You...Vangie

I am sorry for your unsuccessfull experience.  Maybe you can look up my Doctor's who performed my surgery in San Antonio, Texas.  His name is Dr./Professor Dennis Vollmer.  I believe he is now located in Houston, Texas.

I asked many questions beforehand as well as many tests run on me, ei. WADA, multiple MRI's, mapping of the brain (Hippocempus), EEG's and I did my research.  What helped me decide is that I am not married nor have any children, so if there was a serious risk of complications or death (As with any surgery), I wouldn't leave anyone parentless or pass on my epilepsy gene.

I can always adopt one day if I get married.

Go with what your heart feels is best for you as well as keeping prayer active within your family and friends.

Prayer works, it worked for me!!

God Bless You...Vangie

Re: nerve repaire

Submitted by Karen Swanson on Sun, 2008-03-23 - 06:01
Hi guys. Am being tested for surgery next month so glad to hear your comments. I don't know who suggested you can't have kids Vangie. I had a panic attack with my neuro when I found out I was pregnant but he assured me I would be fine. I've gotta say I was terrified how the child would turn out as he sucked all the drugs outta me and I often found myself on the floor. Meanwhile the docs were pushin my doses up + up+up...... However he has come out perfect. 4 years old and no sign of disorders at all. If he catches a cold, guaranteed I'll get it worse. I'd died in an ambulance long before I was his age but he has shown no signs of anything wrong with him. I don't know why any of you are being told you can't carry. Its no worse than if you drink a few

which nerves?

Submitted by mommy2kyra on Fri, 2008-01-11 - 13:06

Like Scott, I am uncertain if you're speaking metaphorically or literally.

There aren't any nerves inside of the brain, just those surrounding the skull. So, I am uncertain exactly what the damage is in which you've referred to. Can you be more specific?  

Regarding the emotional damage, I can certainly relate to that. Since surgery, my mild depression quickly became severe. I felt nearly alone, as most people speak of how they'd do it all again in a heartbeat. Most were (are) very pro-surgery. That has been difficult for me. As it has made me feel even more alone. There are others who haven't had an "easy" surgery. Those of us who have had physical and emotional struggles since their surgeries. I have developed a group for those people here. You are certainly welcome to come check it out. My hope is to take that feeling of isolation each of are suffering away.

It's under groups, called: Struggling after surgery

Best of luck to you...hope to see you again :)

Heather

*refractory seizure surgery on left temporal lobe 03/06*

Like Scott, I am uncertain if you're speaking metaphorically or literally.

There aren't any nerves inside of the brain, just those surrounding the skull. So, I am uncertain exactly what the damage is in which you've referred to. Can you be more specific?  

Regarding the emotional damage, I can certainly relate to that. Since surgery, my mild depression quickly became severe. I felt nearly alone, as most people speak of how they'd do it all again in a heartbeat. Most were (are) very pro-surgery. That has been difficult for me. As it has made me feel even more alone. There are others who haven't had an "easy" surgery. Those of us who have had physical and emotional struggles since their surgeries. I have developed a group for those people here. You are certainly welcome to come check it out. My hope is to take that feeling of isolation each of are suffering away.

It's under groups, called: Struggling after surgery

Best of luck to you...hope to see you again :)

Heather

*refractory seizure surgery on left temporal lobe 03/06*

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