Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Complications from surgery for epilepsy

Fri, 01/11/2008 - 08:08
Hi, I had surgery for epilepsy September 2006. I am now having problems with the nerve repaire emotionaly and physicaly and I want to know if anybody else is going threw this or has gone threw this. It would be nice to hear from others to know how to deal with it and someone who understands.

Comments

Re: Complications from surgery for epilepsy

Submitted by VSimba08 on Mon, 2008-03-10 - 03:56

Hello everyone!

There are definately certain limitations that I am faced with including diminished peripheral vision, depression and obsessive compulsive behavior.  But a great trade off from seizures.

I had my right Temporal Lobectomy surgery on Oct. 23, 2002.  Maybe for the first 3 years I suffered from migraines that were controlled.

I have mild short-term memory loss but have developed an excellent memory for numbers. I am not as shy as I was before for 7 years living with epilepsy.  You know I no longer feel embarrassed or fear that someone will see me have a seizure.

I am currently seizure and medicine free for epilepsy.  My self esteem has grown.

I am 37 yrs of age and even though I have been through 5 other unrelated surgeries since then, I feel very blessed that I recovered wonderfully.  God has me here for a reason.

 I have survived multiple dangerous seizures while driving, almost drowning and being unconcious in my apartment for 3 days.

University Health System has been great to me. Now I will be having gall bladder surgery this Wednesday.  I feel brave and know I will overcome this. (Hopefully my last surgery ever).

So trust me there is much hope for you and you will continue to improve.  Keep your chin up.

With my testimony there is definately hope and a wonderful light at the end of the tunnel.

God Bless you!  Vangie

Hello everyone!

There are definately certain limitations that I am faced with including diminished peripheral vision, depression and obsessive compulsive behavior.  But a great trade off from seizures.

I had my right Temporal Lobectomy surgery on Oct. 23, 2002.  Maybe for the first 3 years I suffered from migraines that were controlled.

I have mild short-term memory loss but have developed an excellent memory for numbers. I am not as shy as I was before for 7 years living with epilepsy.  You know I no longer feel embarrassed or fear that someone will see me have a seizure.

I am currently seizure and medicine free for epilepsy.  My self esteem has grown.

I am 37 yrs of age and even though I have been through 5 other unrelated surgeries since then, I feel very blessed that I recovered wonderfully.  God has me here for a reason.

 I have survived multiple dangerous seizures while driving, almost drowning and being unconcious in my apartment for 3 days.

University Health System has been great to me. Now I will be having gall bladder surgery this Wednesday.  I feel brave and know I will overcome this. (Hopefully my last surgery ever).

So trust me there is much hope for you and you will continue to improve.  Keep your chin up.

With my testimony there is definately hope and a wonderful light at the end of the tunnel.

God Bless you!  Vangie

Re: Complications from surgery for epilepsy

Submitted by Sheri1969 on Sat, 2008-05-03 - 01:59

I had a RTL in 1990 and though it stopped my seizures, the emotional turmoil I go through is sometimes worse.  I won't say that the emotional rollercoaster and no emotional understanding or control is fun, but at least I can live on my own.  Had it not been for the surgery, I have my doubts I'd be alive.  I have great emotional turmoil, but at least my 20 seizures a day are gone.  I have a psychiatrist, a Canadian Mental Health Association worker, a great family doctor and I talk with others who struggle.  I also self-educate by reading tons of self help books on emotions and the turmoil of them - trying to educate myself and relearn them.  Let me know if you want to talk further.

Jesus Is My Rock, Music Is My Sanity. Sheri L. Adams

I had a RTL in 1990 and though it stopped my seizures, the emotional turmoil I go through is sometimes worse.  I won't say that the emotional rollercoaster and no emotional understanding or control is fun, but at least I can live on my own.  Had it not been for the surgery, I have my doubts I'd be alive.  I have great emotional turmoil, but at least my 20 seizures a day are gone.  I have a psychiatrist, a Canadian Mental Health Association worker, a great family doctor and I talk with others who struggle.  I also self-educate by reading tons of self help books on emotions and the turmoil of them - trying to educate myself and relearn them.  Let me know if you want to talk further.

Jesus Is My Rock, Music Is My Sanity. Sheri L. Adams

Re: Complications from surgery for epilepsy

Submitted by ahardway on Mon, 2008-05-05 - 21:06
Congrats Sherri1969! I am considering surgery myself and have been told because of my age and frequency of my seizure it would be highley sucessful.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.