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Hemispherectomy
Mon, 02/21/2005 - 20:03I am the nanny of a 9 year old little boy who had a anotomical hemispherectomy just over 3 weeks ago. He has been very sick since the surgery. His temp goes up to 103 or higher every day. He can hardly talk. He is in constant pain on the right side of his body, which is paralized. He can't walk. I just feel so horrible for him that his life has been reduced to this. He was have 15-100 grand mal seizures a day before the surgery and was in status epilepticus when the doctors finally said we had to do the surgery now or we would lose him. He's had a VNS, a temporal lobectomy and was on 16 different meds (phelbatol, phenobarb., ativan, diastat, trileptol, lamectol, prednisone,etc.) After the surgery he is seizure free. I am just wondering if anyone has any knowledge of what to expect. None of the Doctors or nurses can tell us anything. Will he walk? Talk? Re-gain vision? Will he be Spenser again? Anyone have any experiance in this? Thanks
Comments
RE: RE: Hemispherectomy
Submitted by crysta95 on Mon, 2005-06-13 - 14:55
RE: RE: Hemispherectomy
Submitted by dayna on Tue, 2005-06-14 - 00:56
Katie,
That is Fantastic news. I am very glad to hear that Spenser is doing so well.
Dayna
Katie,
That is Fantastic news. I am very glad to hear that Spenser is doing so well.
Dayna
RE: Hemispherectomy
Submitted by spenserman on Mon, 2005-06-13 - 10:55
Just wanted to update anyone interested....
Spenser had an anatomical hemispherectomy in January of this year to stop the 15-100 grand mal seizures a day that he was having. When he awoke from the 7 hr. surgery, he couldn't speak or move his left side. He was in pain and miserable. As of today, Spenser is seizure free! He is walking with a cane, talking, going to school and acting like a normal nine year old boy! He even plans to go to camp this summer. He has been tapered off all meds and is doing GREAT! What a blessing!!!!! When I think of where we were six months ago and where we are today, I am still completely amazed. Thanks for all your support and information!
Katie
Just wanted to update anyone interested....
Spenser had an anatomical hemispherectomy in January of this year to stop the 15-100 grand mal seizures a day that he was having. When he awoke from the 7 hr. surgery, he couldn't speak or move his left side. He was in pain and miserable. As of today, Spenser is seizure free! He is walking with a cane, talking, going to school and acting like a normal nine year old boy! He even plans to go to camp this summer. He has been tapered off all meds and is doing GREAT! What a blessing!!!!! When I think of where we were six months ago and where we are today, I am still completely amazed. Thanks for all your support and information!
Katie