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Hemispherectomy

Mon, 02/21/2005 - 20:03

I am the nanny of a 9 year old little boy who had a anotomical hemispherectomy just over 3 weeks ago.  He has been very sick since the surgery.  His temp goes up to 103 or higher every day.  He can hardly talk.  He is in constant pain on the right side of his body, which is paralized.  He can't walk.  I just feel so horrible for him that his life has been reduced to this.  He was have 15-100 grand mal seizures a day before the surgery and was in status epilepticus when the doctors finally said we had to do the surgery now or we would lose him.  He's had a VNS, a temporal lobectomy and was on 16 different meds (phelbatol, phenobarb., ativan, diastat, trileptol, lamectol, prednisone,etc.)  After the surgery he is seizure free.  I am just wondering if anyone has any knowledge of what to expect.  None of the Doctors or nurses can tell us anything.  Will he walk?  Talk?  Re-gain vision?  Will he be Spenser again? Anyone have any experiance in this?  Thanks 

Comments

RE: RE: Hemispherectomy

Submitted by cable9 on Tue, 2005-06-14 - 10:35

I hope he does very well in recovery and life,,

Kevin

I hope he does very well in recovery and life,,

Kevin

RE: RE: Hemispherectomy

Submitted by maggie on Tue, 2005-06-14 - 12:32

Hi Katie, I am so happy that Spencer is doing so much better. We may all try to give advice of our own situations and say things to make you feel better,but only God answers our prayers.I have been praying for Spencer.Please keep us posted on his improvements.I will continue to pray for you,Spencer and his famiy.

                God Bless, Maggie

Hi Katie, I am so happy that Spencer is doing so much better. We may all try to give advice of our own situations and say things to make you feel better,but only God answers our prayers.I have been praying for Spencer.Please keep us posted on his improvements.I will continue to pray for you,Spencer and his famiy.

                God Bless, Maggie

RE: RE: RE: Hemispherectomy

Submitted by spenserman on Sun, 2005-06-19 - 20:44

Thank you so much everyone!  I appreciate the words of encouragement and support.

 

Katie

Thank you so much everyone!  I appreciate the words of encouragement and support.

 

Katie

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