Kinda freaked out

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At my last neuro appt. I got the feeling that he wanted to cut into my brain. I know that everyone who has gotten brain surgery and has come out on top, sing nothing but it's praises. You never hear about the ones that didn't help. Those are the ones that I'm interested in hearing a little about.

Comments

Hi rosegirl, I don't blame

Submitted by solis on Thu, 2007-05-24 - 18:04

Hi rosegirl, I don't blame you one iota for being freaked out. And the idea that an MD would suggest the risk of surgery (there is always a risk) to someone who is well controlled already makes no sense. best wishes with the VNS implant, ~sol

Re: Hi rosegirl, I don't blame

Submitted by rosegirl on Thu, 2007-05-24 - 18:23

Well I hadn't seen my doc for a long time and had had 3 seizures that seemed all clustered together. But other than that my seizures are under control. I get my seizures around my period either before or after usually and this time I had one before and one after. So that's probably why he threw the idea of surgery out there.

Re: Kinda freaked out

Submitted by lisaltstheresa on Wed, 2007-05-16 - 07:55

Hi Rosegirl, I personally think people take surgery too lightly. And I mean those people who want to go in for surgery because they had enough. Enough of dealing with seizures. I was one of them. They dont know the full out come. Sure you have people who become seizure free, but there are many who have to go through hell too. I have had a surgery starting in 94. I had to go through two brain mappings. Then I had to go through surgery four times. I am not seizure free, but I have decreased about 15 seizures a month. But my life came to a halt, for 94, 96 and 97. I just thought I will go in and I will become seizure free. I went in the first time with a very big positive attitude. Well that screwed me. For I went into a major depression for seven months when I came out and was turned down the first time. People want to walk in get surgery, get seizure free and thats that. But it dont always happen that way. People need to be aware. I am not trying to scare you. I am trying to make you and others see that there could be so many other issues involved. Dont go in with saying you are going to be seizure free. Just hope that you get a decrease and you will be on the safe side. Even my surgeon said, people go in with the thought of being seizure free and end up with major depressions. Surgery is not all its cut out to be, by some who have been seizure free. For some had surgery and became seizure free. I am sure there are many who had to go through hell to get there too. I think that is wonderful, and I truly wish them the best. But you have gone the right direction to look at those who didnt become seizure free and what did they have to go through. I mean there are other issues. What happens after surgery. What side effects do we have? I have some issues, memory, finding words, typing some of my words or letters. So there are issues involved. I am not pushing you away from surgery. But my suggestion is take your time and truly prepare yourself. For sometimes it can be a long process. You have started the smart way of looking into brain surgery. The negatives first then the positives. Sure there are many who became seizure free and are doing well too. But there are many who just had a decrease, or go through surgery several times. I want to wish you the best in making your decision. take care Lisa http://health.groups.yahoo.com/group/epilepsyapproach1/ http://health.groups.yahoo.com/group/epilepsyapproach/ http://www.sleep-safe.co.uk/id90.htm