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Kinda freaked out
Fri, 05/11/2007 - 20:04Topic: Surgery and Devices
At my last neuro appt. I got the feeling that he wanted to cut into my brain. I know that everyone who has gotten brain surgery and has come out on top, sing nothing but it's praises. You never hear about the ones that didn't help. Those are the ones that I'm interested in hearing a little about.
Comments
Re: Re: Re: Kinda freaked out
Submitted by Raid on Sat, 2007-05-26 - 16:46
Hi Rosegirl,
I suffered a lot with Complex Partial Seizures.Like Sol I had brain Surgery there on the 4th January just gone.My Seizures were getting worse and I felt I had no control whats so ever. so I decided to go for the surgery as I was told by my Neurologist that It was unlikely that they were ever going to control my seizures fully under control with anticonvulsants. I had tried so many and I was getting sick of it.I had a Craintomny and a partial hippocampectomy done on my left temporal lobe. Sorry for the bad spelling. Since I had the surgery I have had no seizures whats so ever. In relation to what you said about the memories I didn't really loose any memories. My memory wasn't great before I had surgery anyway so having the surgery hasn't effected it too badly. My life has totally changed and I feel like a totally new person. I am so glad I made the decision to go for the surgery.
Take care
Raid.
Re: Re: Re: Re: Kinda freaked out
Submitted by laurensmyprincess on Tue, 2007-07-03 - 22:02
Hi there --
My 5 year old daughter is scheduled for a temporal lesionectomy on July 19th. She has focal cortical dysplasia which is causing her complex partial seizures. They plan to resect that area. Surgeon feels he can get it all without consequences to her -- it is mostly in her anterior temporal lobe. We feel very fortunate that we have this option for her. Surgery is a scary prospect -- but if you trust your medical team and she is a good candidate, you need to really consider it.
Are we scared? You bet. Have we been up and down an emotional rollercoaster making this decision? Absolutely. But, we are at a place where we know this is her best option at being seizure free or greatly reducing frequency and duration of the seizures.
Good luck to you in making this decision. Please everyone send positive vibes our way on the 19th if you could. Congrats to all of you who have had successful surgeries...you are an inspiration!
Re: Re: Kinda freaked out
Submitted by rosegirl on Thu, 2007-05-24 - 16:04
Thanks for all that info. My parents are the ones who see it as going in with seizures and coming out seizure free. I can see myself going in with seizures and coming out not knowing who my parents are(and bald). They're the ones who are glass is half full, sometimes more than. I'm the one who looks at things and sees them for what they are or I definitely look at the negative side before I see the positive. I've already gone through a depression and I really don't want to relive that again. I'm afraid of losing memories, from when I was little to the present. Things like when me and my sister would stay up until midnight talking about whatever. I'm also afraid that I might come out worse than when I came in. You haven't scared me away from surgery. I'm doing a fine job of that by myself :) Although you aren't seizure free, I'm glad that your seizures had decreased.