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Lobectomy

Tue, 03/25/2008 - 20:34
Topic: Surgery and Devices
Hello, my name is Laurie and I have had epilepsy for 14 years. My seizures have never been controlled through medication and my doctors are currently considering brain surgery to correct my seizures. I am already going through the pre-surgery tests and am waiting for the results to find out if and when the surgery will happen. I am looking for anybody who may have been through this surgery or may have some insight on the experience. The doctors have already told me that my chances at the surgery are pretty good. However, I know that they tend to "sugar-coat" things for patients. I would like to know more details of success rates and recovery issues after the surgery. Anyone who might be able to offer some advice would be greatly appreciated.

Comments

Re: Lobectomy

Submitted by RTL on Thu, 2008-04-03 - 21:24

I had this surgery a little over 5 years ago and have detailed the experience at the link below:

http://users.eastlink.ca/~kehoe/

Kevin 

 

 

I had this surgery a little over 5 years ago and have detailed the experience at the link below:

http://users.eastlink.ca/~kehoe/

Kevin 

 

 

Re: Lobectomy

Submitted by pick61 on Thu, 2008-04-03 - 22:06

Hi Laurie:

I had a left temporal lobectomy last July after living with uncontrolled seizures my entire life. It is one of the best things I have ever done for myself as I have been seizure free since the day before the surgery.

As aussie suggested, if you can have someone stay with you for the first little while post-surgery it is definitely helpful.

Yes the prospect of surgery can be daunting, but if you have a doctor who takes the time to explain everything to you, including the risks, then it is well worth giving serious consideration to.

Best of luck, whatever you decide.

 

Hi Laurie:

I had a left temporal lobectomy last July after living with uncontrolled seizures my entire life. It is one of the best things I have ever done for myself as I have been seizure free since the day before the surgery.

As aussie suggested, if you can have someone stay with you for the first little while post-surgery it is definitely helpful.

Yes the prospect of surgery can be daunting, but if you have a doctor who takes the time to explain everything to you, including the risks, then it is well worth giving serious consideration to.

Best of luck, whatever you decide.

 

Re: Lobectomy

Submitted by Ranger on Tue, 2008-04-22 - 07:01

Hello Laurie, My name is Scott. I just has my Right Temporal Lobectomy about 5 months ago 11/12/2007. I had seizures from 18 months  till 4 yrs old. They went into remission till I was 17 yrs old. Then came back for 20 straight years till I was 37. Which is when I had my surgery. I was having about 2 Tonic Clonics a day. As well as several simple partials and complex partials scattered through out the week. Since surgery Ive only had 1 Tonic Clonic due to a high fever. No complex partials. And my simple partials continue to become less and less frequent as time goes on. It is a 12 month healing process of which I am only at the 5th month so I continue to improve as time goes on. I saw someone on another post make the comment that attitude is huge in the way you heal from the surgery. I totally agree. I have been enjoying life for the 1st time in decades and it certainly has helped in my healing process.

Laurie, Good luck in whatever you decide. And if you do go through with it good luck with the surgery as well. Take care Scott.

Hello Laurie, My name is Scott. I just has my Right Temporal Lobectomy about 5 months ago 11/12/2007. I had seizures from 18 months  till 4 yrs old. They went into remission till I was 17 yrs old. Then came back for 20 straight years till I was 37. Which is when I had my surgery. I was having about 2 Tonic Clonics a day. As well as several simple partials and complex partials scattered through out the week. Since surgery Ive only had 1 Tonic Clonic due to a high fever. No complex partials. And my simple partials continue to become less and less frequent as time goes on. It is a 12 month healing process of which I am only at the 5th month so I continue to improve as time goes on. I saw someone on another post make the comment that attitude is huge in the way you heal from the surgery. I totally agree. I have been enjoying life for the 1st time in decades and it certainly has helped in my healing process.

Laurie, Good luck in whatever you decide. And if you do go through with it good luck with the surgery as well. Take care Scott.

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