Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Lobectomy

Tue, 03/25/2008 - 20:34
Topic: Surgery and Devices
Hello, my name is Laurie and I have had epilepsy for 14 years. My seizures have never been controlled through medication and my doctors are currently considering brain surgery to correct my seizures. I am already going through the pre-surgery tests and am waiting for the results to find out if and when the surgery will happen. I am looking for anybody who may have been through this surgery or may have some insight on the experience. The doctors have already told me that my chances at the surgery are pretty good. However, I know that they tend to "sugar-coat" things for patients. I would like to know more details of success rates and recovery issues after the surgery. Anyone who might be able to offer some advice would be greatly appreciated.

Comments

Re: Lobectomy

Submitted by reba on Tue, 2008-04-22 - 11:17

Hi Laurie,

Hi Laurie,

Re: Lobectomy

Submitted by Sheri1969 on Sat, 2008-05-03 - 01:55

Hi Laurie.  I had a RTL in 1990.  I was like you - my seizures could not be contolled by medications.  My seizures have stopped completely since then.  However, my emotions are uncontrolable.  I have no understanding of them or how to control them and often wind up in turmoil.  I don't want to discourage you.  For the pain of the needles that freeze your head and for the headaches you get during and after the surgery, if it controls the seizures - all the short-lived pain is WELL WORTH IT.  Just make sure you are well informed and know what your outlook AFTER the surgery is, not only with epilepsy, but emotions, body functions, etc.  I function normally, except for my emotions.  If your seizures are uncontrolled and surgery is a good outlook, I'd say go for it.  The pain is VERY SHORT LIVED and well worth it.  If you want more information, let me know.

Jesus Is My Rock, Music Is My Sanity. Sheri L. Adams

Hi Laurie.  I had a RTL in 1990.  I was like you - my seizures could not be contolled by medications.  My seizures have stopped completely since then.  However, my emotions are uncontrolable.  I have no understanding of them or how to control them and often wind up in turmoil.  I don't want to discourage you.  For the pain of the needles that freeze your head and for the headaches you get during and after the surgery, if it controls the seizures - all the short-lived pain is WELL WORTH IT.  Just make sure you are well informed and know what your outlook AFTER the surgery is, not only with epilepsy, but emotions, body functions, etc.  I function normally, except for my emotions.  If your seizures are uncontrolled and surgery is a good outlook, I'd say go for it.  The pain is VERY SHORT LIVED and well worth it.  If you want more information, let me know.

Jesus Is My Rock, Music Is My Sanity. Sheri L. Adams

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.

Subscribe