Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Meeting with a Doc today about surgery

Thu, 01/15/2009 - 12:39

Hi all,

 I know its kind of a typical question. But it seems to me like 50/50 seem totally cured from having the surgery.  I dont know what to do. I'm meeting with a Dr. on Long Island this afternoon to discuss it.  My seizures started when i was 20 and they were about 1 a year till i was 25. (27 now) since then i've been having more and more. And when i say seizures, i mean all 225 pounds hitting the floor.  Lately they've been more and more frequently and almost always when i've had less than 8hrs sleep.

 I'm getting married in July to a great woman, and the worst of all of it is knowing how much it wretches her heart.  on Tuesday I had one while driving and by God's hand I Came to on the side of the road un injured, my car barely had a scratch on it!  but a few weeks ago I barely made it out of the shower in time and collapsed in the door way and split my brow open.

Anyway, I'm meeting this Dr. Today to see about the surgery. I was hoping I could get a few comments from people who have had it done and seen some long term healing.

Also, i'm just outside NYC, does it matter which Dr. does this? or is it like getting a wisdom tooth out? (pretty standard these days?

 

thanks,

Kevin

Comments

Re: Meeting with a Doc today about surgery

Submitted by yvonneloke on Sat, 2009-03-28 - 12:36
I have an urgent request for help. I am a VNS'er myself and have a friend who is hoping to get one, but for depression. He has talked to several people who's VNS you can hear go off as well as have their voices dramatically affected when it goes off. This surgery will most likely save his life, but he won't have it if people can hear the device or his voice change every few minutes. If you don't have those side effects and would be willing to speak with him to provide some assurance to a young man who really needs help deciding, please let me know. He is willing to call you on his dime and we will both be eternally grateful. Thanks, Yvonne

Re: Meeting with a Doc today about surgery

Submitted by hockeyfan on Fri, 2009-04-03 - 16:44

Dpudsy,

Hi!!!

I've been going to Toronto Western for a few years now (No. #1 when it comes to neurology) and on May 1st (my birthday of all days!!)

going to be meeting with a surgeon (Dr. Valiante) about what my possble surgery options may be.

Just had a structural MRI earlier this week & wanted to know if this was the same doctor that performed your wife's surgery or if you could provide me with the name of the surgeon. Just curious. Thnxs!!!

 

 

Dpudsy,

Hi!!!

I've been going to Toronto Western for a few years now (No. #1 when it comes to neurology) and on May 1st (my birthday of all days!!)

going to be meeting with a surgeon (Dr. Valiante) about what my possble surgery options may be.

Just had a structural MRI earlier this week & wanted to know if this was the same doctor that performed your wife's surgery or if you could provide me with the name of the surgeon. Just curious. Thnxs!!!

 

 

Re: Meeting with a Doc today about surgery

Submitted by babzy on Fri, 2009-02-06 - 02:07

kevin glad to see your going foward. does it matter wat dr, does tgis surgery? i beleive it to be a neuro-surgeon good luck  and cograts to bot of you

kevin glad to see your going foward. does it matter wat dr, does tgis surgery? i beleive it to be a neuro-surgeon good luck  and cograts to bot of you

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.