Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Meeting with a Doc today about surgery
Thu, 01/15/2009 - 12:39Hi all,
I know its kind of a typical question. But it seems to me like 50/50 seem totally cured from having the surgery. I dont know what to do. I'm meeting with a Dr. on Long Island this afternoon to discuss it. My seizures started when i was 20 and they were about 1 a year till i was 25. (27 now) since then i've been having more and more. And when i say seizures, i mean all 225 pounds hitting the floor. Lately they've been more and more frequently and almost always when i've had less than 8hrs sleep.
I'm getting married in July to a great woman, and the worst of all of it is knowing how much it wretches her heart. on Tuesday I had one while driving and by God's hand I Came to on the side of the road un injured, my car barely had a scratch on it! but a few weeks ago I barely made it out of the shower in time and collapsed in the door way and split my brow open.
Anyway, I'm meeting this Dr. Today to see about the surgery. I was hoping I could get a few comments from people who have had it done and seen some long term healing.
Also, i'm just outside NYC, does it matter which Dr. does this? or is it like getting a wisdom tooth out? (pretty standard these days?
thanks,
Kevin
Re: Meeting with a Doc today about surgery
Submitted by me_2 on Tue, 2009-04-28 - 13:00
Hi Kevin
My experience with the problem started when I was 17. I would have on average one siezure a week. Mine were classified as complex partial but would sometimes cross over and become grandmal. After trying every medication and even testing a couple, my siezures would be less severe and less often for a bit, then go back to the same as they were. When I was 34 I decided I had enough and asked if I could have surgery.as far as whose the best surgeon, that will be decided by who relieves you of the problem.in my case it was Dr Elisevich at Henry Ford Hosp in Detroit MI.When and if you have the surgery, you will first go through a number of tests right up to the point thier ready to operate. if it doesn't look like it will improve your life, they say they won't do it.In my case I have been siezure free for 13 years now since the operation and the only med I take for it is a minimum therapeutic level of Tegretol.if they made the correct size pill, that would be 2 pills a day.
I hope this helps you and eases your mind!
I wish you luck Kevin
Hi Kevin
My experience with the problem started when I was 17. I would have on average one siezure a week. Mine were classified as complex partial but would sometimes cross over and become grandmal. After trying every medication and even testing a couple, my siezures would be less severe and less often for a bit, then go back to the same as they were. When I was 34 I decided I had enough and asked if I could have surgery.as far as whose the best surgeon, that will be decided by who relieves you of the problem.in my case it was Dr Elisevich at Henry Ford Hosp in Detroit MI.When and if you have the surgery, you will first go through a number of tests right up to the point thier ready to operate. if it doesn't look like it will improve your life, they say they won't do it.In my case I have been siezure free for 13 years now since the operation and the only med I take for it is a minimum therapeutic level of Tegretol.if they made the correct size pill, that would be 2 pills a day.
I hope this helps you and eases your mind!
I wish you luck Kevin