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Scared of surgery
Thu, 01/03/2019 - 11:56Topic: Surgery and Devices
Hello. I am 42 years old and i have right temporal lobe epilepsy. I have exhausted all the medication changes that are worth dealing with. Now with only a 5% chance of any medications working, surgery is here. A year and a half of miserable testing and they believe they have the spot and no damage will come from removing that small section. If that doesn’t do it, we cut out more. I have a really hard time believing there is ANY part of your brain you dont need. Advice please! Scared, confused, undecided! Please help!
Comments
Nigel,I too was very glad I
Submitted by birdman on Sat, 2019-01-05 - 20:17
Nigel,I too was very glad I made the change; I was not only uncomfortable with the recommended treatment, I strongly disliked the way the epilepsy specialist at the first center was treating me. I felt like doctor thought of me as a child who needed to be led by the hand and told what to do. Being at university hospital for >25 years I had seen over a half dozen epilepsy specialists who were much more sensitive than that doctor.Could you clarify what you meant. "...when you, the medical side, don't take them seriously, well, they sure should look into other medical specialists." They (the epilepsy doctor) should look into other specialists?Thanks for your comments,Mike
Thanks for pointing that out
Submitted by Jazz101 on Sun, 2019-01-06 - 15:37
Thanks for pointing that out Michael. When I revised that last paragraph, the way it was structured, well, I can see how it can create come confusion as to what the point is. :)I was referring to the fact that given Epilepsy can be so misunderstood, well, sometimes the patient can find him or herself with a specialist who is incomplete in their assessment. For beginners, some can approach us as if we are still in pre-school. :) You cited a great example when you found yourself being assessed as if you are a child. I once left an organization who dealt with Epilepsy because the individual I saw was similar; not that good in her approach to individuals with this condition.
Great to know that you looked
Submitted by Jazz101 on Sat, 2019-01-05 - 19:50
Great to know that you looked into other teams Michael. Having Epilepsy doesn't mean we have to settle when it comes to how our team operates. Medicine is like any other area in business. Your clients are important. As a result, when you, the medical side, don't take them seriously, well, they sure should look into other medical specialists. Best Regards