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Scared of surgery
Thu, 01/03/2019 - 11:56Topic: Surgery and Devices
Hello. I am 42 years old and i have right temporal lobe epilepsy. I have exhausted all the medication changes that are worth dealing with. Now with only a 5% chance of any medications working, surgery is here. A year and a half of miserable testing and they believe they have the spot and no damage will come from removing that small section. If that doesn’t do it, we cut out more. I have a really hard time believing there is ANY part of your brain you dont need. Advice please! Scared, confused, undecided! Please help!
Comments
Some really great advice; not
Submitted by 1994-JDS-Now on Tue, 2019-04-09 - 13:32
Some really great advice; not satisfied with present team, so I am looking around for second opinion. This was all great information. Thanks!
I have this same situation.
Submitted by acorona on Wed, 2019-07-10 - 11:15
I have this same situation. Did you end up having the surgery?
Hi, I have the exact type of
Submitted by T. on Thu, 2019-03-14 - 16:35
Hi, I have the exact type of seizures as yourself. Medications didn't work I had VNS surgery thinking it may help. It didn't. I've been epileptic since I was 4 years old. I'm now 36. I was desperate to be free of my seizures so when my doctor mentioned surgery I jumped at the chance. Don't be scared. Yes, there are risk, but the possibility of being seizure free is worth it. The surgery isn't as bad as you might think. I had mine this Feburary 7 and I haven't had a seizure since. I know it worked because a number of my seizures coincided with my monthly and I haven't had one seizure since my surgery. I'll admit the first month of recovery was bad. Your jaw will hurt and it will hurt to chew for the first month or two of recovery. The worst part are the headaches. They can be extremely painful without medication. I also had extreme sensitivity to light and sound that would make the headaches even worst. I had to walk around with sunglasses and wear ear plugs. If you do decide to get it I'd suggest getting as much sleep as possible after. I literally did nothing but sleep the entire month of February and I was back to my old self by March and already returned to work. Good luck.