Surgery right temp lobe 07/10/07 I'm getting nervous

Maria Hello, I also have complex partial seizures to the right frontal lobe of the brain. My Dr. has been telling/prepping me about the surgery and I too am scared. I still have yet to be told if I am 100% getting it though. Angie has raised many of the same questions I too have. However she missed one. I know it prob. differs from one person to another. But, how long of a recovery time do you feel you need to get up and feeling back to yourself again? Maria (age 24)

Kevin, Hey, thanx for your insightful sight. I have a RTL tumor and TLS that suck!! They have been ongoing for 6+ years now despite tons of meds to control them. My docs keep adding and upping meds and my brain keeps seizing. I had some problems also with doctors, I got "lost" in a large university of doctors system, and kept ending up with the wrong docs. First, when I was 23, I saw a pediatric neurologist, which was okay until I told him I wanted to have a baby, and he did'nt know what to do with me, so he referred me. Next, I ended up with a neuro-oncologist, who would basically look at my MRI and say, "I guess I saw the spot everyone is talking about, if that little thing is it, it is really so small and hard to find." I remember thinking, yeah, when you look at huge cancer tumors everyday, i guess it is, but if it was in your head, I bet you would not be saying that. Finally, through a long process I ended up with an awesome doctor who got the ball rolling for me. I was set up for video EEG also, and I am glad to hear I am not the only one that took a while. The week before I was admitted, on all my meds at home, I had 4 seizures in 1 week. The day of admission, I had one at the hospital 1 hour before being hooked up (go figure), and then I waited.........! It was very frustrating. I will also add, my not so nice father, use to tell me that he thought that I faked my seizures for attention, so while I was laying there in the hospital, having no seizure for 3 days, those thoughts were rushing back!! Horrible, I know! Anyway, after all the meds were finally stopped, partly with my help (by not taking all of them), the night of day 4 I had one seizure. It was on a Saturday though, and the doctor wanted an Ictal SCAN and the hospital did not do them on weekends, so I had to wait. 5 more seizures on Sunday, and then Monday came, and finally we were able to do the scan, and so my meds were restarted. A total of 10 seizures from Sat. night until Monday Noon, when they restarted my meds. As you know, a crappy way to spend the week, but I should be glad, guess it was shorter than your stay. So, now in one month, I am to go back for the WADA and psych test and then surgery is pre-set for end of august, early sept. I cannot believe it, and I only can hope and pray to be seizure free, which is what we all hope for by this right?!?!?!? Thnks for listening! Stephanie Also Angie, keep me posted if you get through sooner. Also, have you already had the Wada? How painful is it? Steph