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I CAN'T TAKE THESE SEIZURES ANYMORE
Sat, 12/17/2005 - 12:14Topic: Women With Epilepsy
I am really ready to jump off the highest building on earth. These hormonal monthly seizures are the BIGGEST problem I have ever had in my life. I can't work full-time, sometimes not even part-time, I can't drive my car, I can't go without some stupid side-effect from these different medications i'm always on, I have another brain test (for possible surgery) to wait in line for, my hormones are all messed up, so my boyfriend is going nuts with a horniless girlfriend, I am becoming very depressed, I cannot help with the bread winning, and any intimacy in the relationship is now gone. And I cannot find any "new positive outlet of life or source of distraction." There are no support groups where I live in upstate ny. Noone I know locally has this problem. My lonely walks and music and art and poetry- THEY AREN'T CUTTING IT ANYMORE. My family, they aren't really family. They don't care about themselves, yet alone anyone else. Seizures are occurring at random, life is a ball of dog doo for me and I am not liking it anymore, 10 years later. So, i'm ready to melt away with the snowmen.......Kelly
Comments
Re: I CAN'T TAKE THESE SEIZURES ANYMORE
Submitted by fastpitchfrkmom on Tue, 2006-09-19 - 11:19
Hey Kelly
I don't have seizures but have a 14 yr. old daughter that does and sometime I don't know how she keeps going... all I have to say is what I tell her... There is a purpose for the seizures, we may not know what it is and we may NEVER know, but trust in God and hang in there. I really admire each and every one of you that deal with the seizures You guys and gals have got to be some of the strongest people that I know.
You are a very special person and I wish you all the luck in the world. please e-mail me anytime if you want to talk. I'm here for ya.
fastpitchfrk's mom
Re: Re: I CAN'T TAKE THESE SEIZURES ANYMORE
Submitted by cntrygrl on Mon, 2007-01-22 - 18:17
Please hang in there, I have complex partial seizure disorder for 15yrs now, the grandmal seizures would happen around my period every month,driving me crazy came with lots of auras,headaches dizzy etc.I havent been able to drive since,I got off my old medicine and got a new doctor that listens to me and put me on another medicine that has helped alot.Mood swings happen and depression,I feel if your boyfriend understands epilepsy he should be more loving and let alot of your mood swings go by,as for the sexual part I have felt that even though I am not in the mood I will satisfy my husband of 20yrs with oral sex if you can and keep his love strong and yours by saying anything loving and forgiving each other for a moment that didnt mean anything important,realize its either the seizures or a side effect of the medicine depressing you at the moment but try and understand each others point during these hard times, does he truely understand what a epileptic is and the side effects so he can let mood swings pass. Know your not alone and will survive this
Re: I CAN'T TAKE THESE SEIZURES ANYMORE
Submitted by debbie1202 on Tue, 2006-09-19 - 10:26
Hi Kelly, I am so sorry that you are having to go through all of this. I was really like that right before I had my surgery-where my body would ache all of the time, I could not drive, I could not work, I was just always afraid of that bad time- a seizure! I finally finshed all of my surgery tests and they went through with the surgery and my body feels so together again. I hope that you will realize that after all of these problems there comes a great answer, your surgery. I hope that you love yourself when the surgery is done. Debbie1202