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Refractory seizures and there increasing
Tue, 05/03/2005 - 08:56Comments
RE: RE: RE: RE: RE: RE: Refractory seizures and there increasi
Submitted by grez-monkey on Thu, 2005-07-07 - 09:09
Belinda,
With what I've been saying and you're replies, you must not understand what I'm trying to explain.
I brought up the name of that new medication called Pregablin (Lyrica) because it may be something new that MY neurologist may end up putting ME on. Not you, ME! Not for you to be taking in the future. For ME to be taking in the future.
What Scorpio and I are talking about are alternative ways of procedures and treatments that may become helpful and effect for you, just as they have for other people with epilepsy. NOT altenate medications, NOT another VNS, but other completly alternate procedures and alternate treatments.
Scorpio mentioned accupuncture. As far as I know, accupunture has nothing to do with any medications. I've suggested the alternate treatment which I'm doing myself. I found out directly from the mother, of a child who had epilepsy, that they worked with this alternative treatment and in time this child became seizure free and was completely off all seizure medications.
Other people with epilepsy have tried alternative treatments of diets, herbs and vitamins, all which may have been much more helpful with controling their seizures, otherwise, they wouldn't be doing it.
All of the alternative treatments don't need your neurologist's approval or premission for you to try them. I talked with my neurologist about the alternative treatment plan that I found out about, and he really didn't think it would work, so he didn't recommend it, or any other alternative treatments. Well, what I decided was for my own body, NOT his. This is my life, NOT his. What I've been doing for myself is working much better, and it's working for my body.
I'd be very willing to take some time to explain to you more in details about what I'm doing. Then you can think about it and decide for yourself whether or not you'd like to try it out for your body. The same thing for what Scorpio said about accupuncture. I'm sure she would be just as willing to explain more about it to you. Then you make the decision whether or not you'd like to give that alternative treatment a try.
Doctors still have not found every possibile treatment that can work for every single person with epilepsy. They have found some that can work to stop people from having seizures. They have found different medications, different surgery procedures, they found out what the VNS can do. These are just some treatments, not all treatments. We are the people with epilepsy having the seizures. We are the people who need to do the searching to find better ways that can help control our seizures. If we don't look for the other ways, who else is going to do the looking?
Bruce
Belinda,
With what I've been saying and you're replies, you must not understand what I'm trying to explain.
I brought up the name of that new medication called Pregablin (Lyrica) because it may be something new that MY neurologist may end up putting ME on. Not you, ME! Not for you to be taking in the future. For ME to be taking in the future.
What Scorpio and I are talking about are alternative ways of procedures and treatments that may become helpful and effect for you, just as they have for other people with epilepsy. NOT altenate medications, NOT another VNS, but other completly alternate procedures and alternate treatments.
Scorpio mentioned accupuncture. As far as I know, accupunture has nothing to do with any medications. I've suggested the alternate treatment which I'm doing myself. I found out directly from the mother, of a child who had epilepsy, that they worked with this alternative treatment and in time this child became seizure free and was completely off all seizure medications.
Other people with epilepsy have tried alternative treatments of diets, herbs and vitamins, all which may have been much more helpful with controling their seizures, otherwise, they wouldn't be doing it.
All of the alternative treatments don't need your neurologist's approval or premission for you to try them. I talked with my neurologist about the alternative treatment plan that I found out about, and he really didn't think it would work, so he didn't recommend it, or any other alternative treatments. Well, what I decided was for my own body, NOT his. This is my life, NOT his. What I've been doing for myself is working much better, and it's working for my body.
I'd be very willing to take some time to explain to you more in details about what I'm doing. Then you can think about it and decide for yourself whether or not you'd like to try it out for your body. The same thing for what Scorpio said about accupuncture. I'm sure she would be just as willing to explain more about it to you. Then you make the decision whether or not you'd like to give that alternative treatment a try.
Doctors still have not found every possibile treatment that can work for every single person with epilepsy. They have found some that can work to stop people from having seizures. They have found different medications, different surgery procedures, they found out what the VNS can do. These are just some treatments, not all treatments. We are the people with epilepsy having the seizures. We are the people who need to do the searching to find better ways that can help control our seizures. If we don't look for the other ways, who else is going to do the looking?
Bruce
RE: RE: RE: RE: RE: Refractory seizures and there increasing
Submitted by Belinda on Thu, 2005-07-07 - 05:17
Bruce,I can always ask my neuro about pregablin when I see him in August.I'm hoping that Felbatol and Topamax go back to working the way they were soon.I see two neuro's my VNS doc and my neuro for my epilepsy. Belinda