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Refractory seizures and there increasing

Tue, 05/03/2005 - 08:56
Topic: Surgery and Devices
Hi I'm going through more again and again.Brain surgery I've had they won't operate on my left side .Right Side was operated on scar tissue was removed.Seizures coming from other side now.VNS doesn't control it's turned off I'm getting it turned back on Monday.It was choking me seveerely.I have no options left with meds.Been to 4 epi centers NIH Montreal,Emory and MCGCan't afford to fly all over the country. Belinda

Comments

RE: RE: RE: RE: RE: RE: RE: Refractory seizures and there incr

Submitted by Belinda on Thu, 2005-07-07 - 19:41
Bruce,I looked at these sites and theres anywere in my state I could call.I don't think I could stick to these treatments either. Belinda

RE: RE: RE: RE: RE: RE: RE: RE: Refractory seizures and there

Submitted by grez-monkey on Fri, 2005-07-08 - 01:43

The center point that is listed on all of those website are in Virginia Beach, Virginia. You don't know what's available in your state because there isn't any whatsoever listed on any of those websites I posted. The list of state where other people are available is included inside a group of actual papers in the treatment plan notebook.

If the treatments were working for you I bet that you would be able to stick to them. Again, because they're very simple and easy to accomplish.

What all I've said was just suggestions for you to know about and look into. However, whatever, it's your decision.

Bruce

The center point that is listed on all of those website are in Virginia Beach, Virginia. You don't know what's available in your state because there isn't any whatsoever listed on any of those websites I posted. The list of state where other people are available is included inside a group of actual papers in the treatment plan notebook.

If the treatments were working for you I bet that you would be able to stick to them. Again, because they're very simple and easy to accomplish.

What all I've said was just suggestions for you to know about and look into. However, whatever, it's your decision.

Bruce

RE: Refractory seizures and there increasing

Submitted by Yakota on Mon, 2005-05-02 - 09:46
Hi Belinda. Sorry to head of your troubles. Let me know how it goes with having the vns turned on again. If you don't mind please ask your neuro what the lowest setting for stimulation is with the vns? I am seeing my neuro but not until June. Plus I would like to compare what my neuro has to say in comparision to what you are told. It would be of great help to me. Thanks. Blessings. Linda.

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