Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Having a Temporal Lobectomy on June 14
Mon, 06/06/2005 - 08:04Hello everyone,
I am having a temproal lobectomy on June 14. Anyone out there have this surgery? Please share.
Diana
Comments
RE: Having a Temporal Lobectomy on June 14
Submitted by mexican_fire on Sun, 2005-06-12 - 15:26
I haven't had that surgery I have JME, and wasn't a candidate for brain surgery, too many kinds of generalized seizures--3.
I just wanted to wish you good luck, I know you are nervous as hell. Anybody that wasn't and you'd worry about them. I hope that everything goes according to plan, and that your recovery is a good one without many complications. I hope that is it a success in that they can successfully stop or at least dramatically decrease the severity, intensity, and frequency of your seizures.
At least you can have this surgery. There are alot of us that start out to have it and wind up finding out that we can't, and have to be on a drug-based therapy for life.
Keep me posted.
Nancy
I haven't had that surgery I have JME, and wasn't a candidate for brain surgery, too many kinds of generalized seizures--3.
I just wanted to wish you good luck, I know you are nervous as hell. Anybody that wasn't and you'd worry about them. I hope that everything goes according to plan, and that your recovery is a good one without many complications. I hope that is it a success in that they can successfully stop or at least dramatically decrease the severity, intensity, and frequency of your seizures.
At least you can have this surgery. There are alot of us that start out to have it and wind up finding out that we can't, and have to be on a drug-based therapy for life.
Keep me posted.
Nancy
RE: Having a Temporal Lobectomy on June 14
Submitted by smokingtp on Mon, 2005-06-13 - 00:09
Some may be adverse to my posts, that is okay. Yet when I look around me, it is
disturbing to witness the discrimination when addressing misrepresentation and experimental rape upon those who suffer epilepsy. It's most shameful, that this new crime is socially acceptable, even by our epilepsy associations.
Am I suppose to shut up, when a patient advocate states, it is a "on-going problem." I am sorry, but this psychosurgical lobectomy has no place for treating epilepsy. If so, there would be no need for misrepresentation upon consent.
Just because we suffer epilepsy, does not mean that we are not entitled to informed consent, and adherence to international law such as the Nuremberg Code. One has to be totally insane, as to whorship a medical profession which says it's okay to lie to a parent, and prostitute a epileptic child for US sponsored "psychosurgical research"
Unauthorized human experimentation upon a minor, is medical child abuse.
Such abuse that should be disclosed, as to prevent further assault.
Right now, there is NO protection, when our provincial and federal government
is playing damage control, along with the College, Health Professions Board, Toronto Police, RCMP, and media, which sits on the Board of Directors.
Check out this 1973 newsletter by Dr. Peter Breggin
CENTER FOR THE STUDY OF PSYCHIATRY
1827 19th Street N.W., Washington,D.C.
Newsletter
Current Psychosurgery In Canada
Psychosurgery, psychiatric brain mutilation for the control of behavior and emotions, is returning in both the United States and Canada. The International Association for Psychiatric Surgery was so informed in 1970, listing many Canadians among it's members. I have mentioned some in the U.S. Congressional Record of Febuary 24, 1972.
The extent of these practices in Canada is still unknown but the list of projects we have tracked down demonstrate that psychosurgery in Canada is on the upswing. The following are known psychosurgical centers.
1) R.F. Hetherington at Kingston Psychiatric Hospital and Queens University, Ontario, has done at least several dozen operations for behavioral change in the past five years. His operation is lobotomy, or frontal lobe mutilation.
2) Heinz Lehmann, Professor and Director of Psychiatry at McGill in Montreal refers patients for lobotomy. He is internationally known supporter of biological, suppressive psychiatry. The surgeon who does his operations is Claude Bernard of Notre Dame Hospital. Lehmann is affilated with Douglas Hospital.
3) Earl Baker and J. F. R. Fleming of the University of Toronto perform operations on a wide variety of individuals as having "excessive tension, anxiety, fear of depression." They, too, use lobotomy and have performed well over 70 operations in recent years.
Hetherington, Baker and Lehmann have each published recent articles advocating psychosurgery.
4) In the Toronto Star of June 3, 1972, Dr. Nancy Alexander outlines the story of two mentally retarded adolescent residents of Ontario Hospital School in Orllia.One girl was given both a prefrontal lobotomy and an amygdalotomy. A 15 year old boy was given an amygdalotomy, The Star article gives these results. "he's no longer bent on self-destruction and there's been a marked improvement in his social behavior." The Center for the Study of Psychiatry has since received information that the boy is worse off now than he was before the operation.
5) Dr. Thomas Morley, chief neurosurgeon at the Toronto General Hospital, has said that as many as 150 psychosurgical operations including cingulotomy andamygdaletomy are performed each year at Toronto General Hospital. Ronald Tasker is reportedly one of the surgeons. Orillia Hospital School for the Rertarded in Orillia, Ontario, sends 2-3 patients to TGH where Tasker and others operate on them.
6) Dr. Kenneth Livingston of Wellesley Hospital in Toronto is a psychosurgeon who experiments with electrodes for depth electrical stimulation and heat congulation of parts of the brain. He claims to have done only a few cases but has been expecting and may have received funding from Ontario Province in recent weeks for a psychosurgical project. A CBC TV expose has been done on this project
7) Dr. Harold J. Hoffman of the Toronto Hospital for Sick Children in Toronto indicated that lobectomies are being performed there.
8) Dr. Leo Lavinskas of Penetanguishe Hospital for the Criminally Insane favours psychosurgery and said in a interview that he was "not averse to recommending it to anyone." However, we know of no cases performed there as yet.
9) Dr. G Tobin of the Children's Psychiatric Institute, Londen, Ontario, indicates that the New University Hospital connected with the University of Western Ontario in Londen, has been setting up to do psychosurgical operations.
10) In Vancouver, B.C., Riverview Psychiatric Hospital refers psychosurgery cases to Royal Columbia Hospital where they have been operated on. Vancouver General also performs these operations. The total may be several dozen or more.
The Center for the Study of Psychiatry hopes that Canadians will be able to send us further information on psychosurgery.
Signed
Dr. Peter R. Breggin
Director
Center for the Study of Psychiatry
October 1973
Yours
Terry
Some may be adverse to my posts, that is okay. Yet when I look around me, it is
disturbing to witness the discrimination when addressing misrepresentation and experimental rape upon those who suffer epilepsy. It's most shameful, that this new crime is socially acceptable, even by our epilepsy associations.
Am I suppose to shut up, when a patient advocate states, it is a "on-going problem." I am sorry, but this psychosurgical lobectomy has no place for treating epilepsy. If so, there would be no need for misrepresentation upon consent.
Just because we suffer epilepsy, does not mean that we are not entitled to informed consent, and adherence to international law such as the Nuremberg Code. One has to be totally insane, as to whorship a medical profession which says it's okay to lie to a parent, and prostitute a epileptic child for US sponsored "psychosurgical research"
Unauthorized human experimentation upon a minor, is medical child abuse.
Such abuse that should be disclosed, as to prevent further assault.
Right now, there is NO protection, when our provincial and federal government
is playing damage control, along with the College, Health Professions Board, Toronto Police, RCMP, and media, which sits on the Board of Directors.
Check out this 1973 newsletter by Dr. Peter Breggin
CENTER FOR THE STUDY OF PSYCHIATRY
1827 19th Street N.W., Washington,D.C.
Newsletter
Current Psychosurgery In Canada
Psychosurgery, psychiatric brain mutilation for the control of behavior and emotions, is returning in both the United States and Canada. The International Association for Psychiatric Surgery was so informed in 1970, listing many Canadians among it's members. I have mentioned some in the U.S. Congressional Record of Febuary 24, 1972.
The extent of these practices in Canada is still unknown but the list of projects we have tracked down demonstrate that psychosurgery in Canada is on the upswing. The following are known psychosurgical centers.
1) R.F. Hetherington at Kingston Psychiatric Hospital and Queens University, Ontario, has done at least several dozen operations for behavioral change in the past five years. His operation is lobotomy, or frontal lobe mutilation.
2) Heinz Lehmann, Professor and Director of Psychiatry at McGill in Montreal refers patients for lobotomy. He is internationally known supporter of biological, suppressive psychiatry. The surgeon who does his operations is Claude Bernard of Notre Dame Hospital. Lehmann is affilated with Douglas Hospital.
3) Earl Baker and J. F. R. Fleming of the University of Toronto perform operations on a wide variety of individuals as having "excessive tension, anxiety, fear of depression." They, too, use lobotomy and have performed well over 70 operations in recent years.
Hetherington, Baker and Lehmann have each published recent articles advocating psychosurgery.
4) In the Toronto Star of June 3, 1972, Dr. Nancy Alexander outlines the story of two mentally retarded adolescent residents of Ontario Hospital School in Orllia.One girl was given both a prefrontal lobotomy and an amygdalotomy. A 15 year old boy was given an amygdalotomy, The Star article gives these results. "he's no longer bent on self-destruction and there's been a marked improvement in his social behavior." The Center for the Study of Psychiatry has since received information that the boy is worse off now than he was before the operation.
5) Dr. Thomas Morley, chief neurosurgeon at the Toronto General Hospital, has said that as many as 150 psychosurgical operations including cingulotomy andamygdaletomy are performed each year at Toronto General Hospital. Ronald Tasker is reportedly one of the surgeons. Orillia Hospital School for the Rertarded in Orillia, Ontario, sends 2-3 patients to TGH where Tasker and others operate on them.
6) Dr. Kenneth Livingston of Wellesley Hospital in Toronto is a psychosurgeon who experiments with electrodes for depth electrical stimulation and heat congulation of parts of the brain. He claims to have done only a few cases but has been expecting and may have received funding from Ontario Province in recent weeks for a psychosurgical project. A CBC TV expose has been done on this project
7) Dr. Harold J. Hoffman of the Toronto Hospital for Sick Children in Toronto indicated that lobectomies are being performed there.
8) Dr. Leo Lavinskas of Penetanguishe Hospital for the Criminally Insane favours psychosurgery and said in a interview that he was "not averse to recommending it to anyone." However, we know of no cases performed there as yet.
9) Dr. G Tobin of the Children's Psychiatric Institute, Londen, Ontario, indicates that the New University Hospital connected with the University of Western Ontario in Londen, has been setting up to do psychosurgical operations.
10) In Vancouver, B.C., Riverview Psychiatric Hospital refers psychosurgery cases to Royal Columbia Hospital where they have been operated on. Vancouver General also performs these operations. The total may be several dozen or more.
The Center for the Study of Psychiatry hopes that Canadians will be able to send us further information on psychosurgery.
Signed
Dr. Peter R. Breggin
Director
Center for the Study of Psychiatry
October 1973
Yours
Terry
RE: Having a Temporal Lobectomy on June 14
Submitted by kwgreulich on Wed, 2005-06-08 - 11:35
I had a left temporal lobectomy July 15, 2003. I actually am having more seizures since the operation than before. They are certainly debilitating. I do have to say it improved my headaches and enabled me to get back to work. The average seizure now lasts for a shorter time and is less severe. I work basically full time as an Ecologist with the Winema National Forest, United States Forest Service. I spend part of my time out in the woods. The remainder of my time is mostly spent doing computer work and aerial photo interpretation. I have a masters in Silviculture and have worked for the the federal government since 1975 in jobs including Park Ranger, Forester, Computer System Analyst, Computer Programmer as well as my current assignment. I have worked on fire supression including being on one of the national "type 2" overhead teams where i was the supply unit leader. I have dispatched on fires from Alaska to Florida and out of the Interagency Coordination Center in Boise, Idaho.
I managed all this in spite of the fact that i had spinal meningitis & hydro-encephalytis requiring 2 brain surgeries before the age of 3. Yes, that was back in the mid 1950s.
God has blessed me and i pray that he will do the same for you.
I had a left temporal lobectomy July 15, 2003. I actually am having more seizures since the operation than before. They are certainly debilitating. I do have to say it improved my headaches and enabled me to get back to work. The average seizure now lasts for a shorter time and is less severe. I work basically full time as an Ecologist with the Winema National Forest, United States Forest Service. I spend part of my time out in the woods. The remainder of my time is mostly spent doing computer work and aerial photo interpretation. I have a masters in Silviculture and have worked for the the federal government since 1975 in jobs including Park Ranger, Forester, Computer System Analyst, Computer Programmer as well as my current assignment. I have worked on fire supression including being on one of the national "type 2" overhead teams where i was the supply unit leader. I have dispatched on fires from Alaska to Florida and out of the Interagency Coordination Center in Boise, Idaho.
I managed all this in spite of the fact that i had spinal meningitis & hydro-encephalytis requiring 2 brain surgeries before the age of 3. Yes, that was back in the mid 1950s.
God has blessed me and i pray that he will do the same for you.