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Having a Temporal Lobectomy on June 14
Mon, 06/06/2005 - 08:04Hello everyone,
I am having a temproal lobectomy on June 14. Anyone out there have this surgery? Please share.
Diana
Comments
RE: RE: RE: RE: RE: Having a Temporal Lobectomy on June 14
Submitted by amazinggrace on Fri, 2005-07-01 - 06:57
hi diane,
my son, 15 yrs, had his left temporal lobe surgery last december here in indonesia (only one doctor could perform such surgery in indonesia, even in spore we couldnt find one). we did all the mri, video eeg and pet scan in spore tho.
he woke up soon he came out of the operation room. the surgery took about 7-8 hrs... he could be released 3 days after the surgery ... i got all his pictures if you are interested, including the scar tissue ..*grin*.. he could play his piano soon he got home and seemed that his memory is improving a lot after the operation.
he's doing really fine after the operation, hopefully will be seizure free for the rest of his life (fingers crossed).
our prayers will be with you
hi diane,
my son, 15 yrs, had his left temporal lobe surgery last december here in indonesia (only one doctor could perform such surgery in indonesia, even in spore we couldnt find one). we did all the mri, video eeg and pet scan in spore tho.
he woke up soon he came out of the operation room. the surgery took about 7-8 hrs... he could be released 3 days after the surgery ... i got all his pictures if you are interested, including the scar tissue ..*grin*.. he could play his piano soon he got home and seemed that his memory is improving a lot after the operation.
he's doing really fine after the operation, hopefully will be seizure free for the rest of his life (fingers crossed).
our prayers will be with you
RE: RE: RE: RE: Having a Temporal Lobectomy on June 14
Submitted by txrhb1 on Fri, 2005-07-01 - 01:24
Hi Diane -
Thanks for keeping me updated! So far, I have only had the VEEG and MRI done. My first neuro had me on so many different meds, that my new epileptologist wants to try some "clinically controlled" medication trials. So far, I'm on my 2nd set of meds with her. She did find mesial temporal sclerosis on both sides, but mainly the right side. She said after the 3rd trial of meds, we would begin testing for the surgery. I think the WADA will be very interesting too. I'm just worried I'll "pop off" and say something I shouldn't ....LOL!
I'm weaning off of Lamictal right now...got the rash, and still having seizures. Starting on Keppra, and have been mean as a rattlesnake for a couple of days!!
My hubby was pretty worried about surgery too. The epileptologist pretty much calmed both of our fears, but it's still a strange feeling to think of having surgery on your brain! My kids keep saying that they're glad I now have proof that I have a brain....they'd been wondering...ha ha!
3DAYS? You've got to be kidding me! That's awesome! Did they say how long the recovery would be?
Keep me posted! I'm glad to hear things are going well, and my prayers are with you!
Barbie
Hi Diane -
Thanks for keeping me updated! So far, I have only had the VEEG and MRI done. My first neuro had me on so many different meds, that my new epileptologist wants to try some "clinically controlled" medication trials. So far, I'm on my 2nd set of meds with her. She did find mesial temporal sclerosis on both sides, but mainly the right side. She said after the 3rd trial of meds, we would begin testing for the surgery. I think the WADA will be very interesting too. I'm just worried I'll "pop off" and say something I shouldn't ....LOL!
I'm weaning off of Lamictal right now...got the rash, and still having seizures. Starting on Keppra, and have been mean as a rattlesnake for a couple of days!!
My hubby was pretty worried about surgery too. The epileptologist pretty much calmed both of our fears, but it's still a strange feeling to think of having surgery on your brain! My kids keep saying that they're glad I now have proof that I have a brain....they'd been wondering...ha ha!
3DAYS? You've got to be kidding me! That's awesome! Did they say how long the recovery would be?
Keep me posted! I'm glad to hear things are going well, and my prayers are with you!
Barbie