right frontal lobe surgery-may have it very soon!

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This ? has been asked before, but I'll try again. not much response to the last person who asked. i guess not many people have frontal lobe surgery. my 25yo daughter may be a good candidate for it. i want to know more about the effects of this surgery on others. she had a brain tumor as a baby and had radiation treatment and surgery at that time. she is cognitively impaired due to above, as well as the epilepsy and high dose meds. we're so worried. it's such a gamble-will her functioning improve or get worse? there will not be a definitive answer to this dilemma, i know. other people's experiences would be helpful. thanks

Comments

Re: right frontal lobe surgery-may have it very soon!

Submitted by juniordeacon749 on Sun, 2013-11-24 - 22:43

I just found this site and see there are questions about surgery to the right frontal lobe. Your questions are very important, because it is life changing. I had surgery to remove two cavernous angeomas in the right frontal lobe in 1994.

I was having gamma seizures and did not want to be on meds the rest of my life. I was in ministry and was very confident everything would be great. They were as far as the seizures.

However, this area controls your emotions, , spiritual activity and other characteristic of ones self.

I did not notice while I was on morphine for the pain. The pain was minable do to the meds in the hospital.

The problems began when I arrived home. I felt as if they took my brain and put it in someone else's body.

I noticed showing affection to the ones I love was not the same. My children were still dear to me, but I was not affectionate like I was. My wife quit sleeping with me, because I was different. Not the same man she married. My parents were always trying to fix me because I became very depressed and to this day still am. At first, they were loving. Then everyone became angry with me and treated me as if I were selfishly using this "act" as they saw it to be lazy, forgetful or draw attention. It became so hard to be around them because I had no answer's. I eventually quit going around. I have limited my relationship with my living mother. Dad is gone and I have so many regrets about things, that I feel I had no control over. Quick temper, depressing everyone around me and not being able to focus. I have no relationship with my two sisters. My depression has affected everyone I love. My children I believe have been affected deeply. They are insecure. My wife, well I don't know. She does not talk. I guess that would tell you something about where she is with it. She has not left yet anyhow. I have had a heck of a time being affectionate until I think we should spend alone time. She feels I use her for that only. I just cannot explain why I cannot be affectionate.

I do not want to make your decision for you. Every case is different. However, I have since found so many online statements with the same outcome. Suicide is very common among us. Divorce and failing family relationships. Talk all this over with the doctors. They may not want to tell you. The money they make for this procedure is astounding. Money has a way of stifling doctors. There is a new procedure coming out where there is some kind of stimulator attached to the surface of the brain, that is promising to do away with these negative side affects. It's supposed to stop the seizures. I do not know much about it.

You are a loving mother who thank God is asking questions. I pray everything works out for you all. I'm sorry if this is not what you wanted to hear. It is truth though and to say something other would be calloused of me. God bless you.

Paul

p:s: I left ministry within four years.

I just found this site and see there are questions about surgery to the right frontal lobe. Your questions are very important, because it is life changing. I had surgery to remove two cavernous angeomas in the right frontal lobe in 1994. I was having gamma seizures and did not want to be on meds the rest of my life. I was in ministry and was very confident everything would be great. They were as far as the seizures. However, this area controls your emotions, , spiritual activity and other characteristic of ones self. I did not notice while I was on morphine for the pain. The pain was minable do to the meds in the hospital. The problems began when I arrived home. I felt as if they took my brain and put it in someone else's body. I noticed showing affection to the ones I love was not the same. My children were still dear to me, but I was not affectionate like I was. My wife quit sleeping with me, because I was different. Not the same man she married. My parents were always trying to fix me because I became very depressed and to this day still am. At first, they were loving. Then everyone became angry with me and treated me as if I were selfishly using this "act" as they saw it to be lazy, forgetful or draw attention. It became so hard to be around them because I had no answer's. I eventually quit going around. I have limited my relationship with my living mother. Dad is gone and I have so many regrets about things, that I feel I had no control over. Quick temper, depressing everyone around me and not being able to focus. I have no relationship with my two sisters. My depression has affected everyone I love. My children I believe have been affected deeply. They are insecure. My wife, well I don't know. She does not talk. I guess that would tell you something about where she is with it. She has not left yet anyhow. I have had a heck of a time being affectionate until I think we should spend alone time. She feels I use her for that only. I just cannot explain why I cannot be affectionate. I do not want to make your decision for you. Every case is different. However, I have since found so many online statements with the same outcome. Suicide is very common among us. Divorce and failing family relationships. Talk all this over with the doctors. They may not want to tell you. The money they make for this procedure is astounding. Money has a way of stifling doctors. There is a new procedure coming out where there is some kind of stimulator attached to the surface of the brain, that is promising to do away with these negative side affects. It's supposed to stop the seizures. I do not know much about it. You are a loving mother who thank God is asking questions. I pray everything works out for you all. I'm sorry if this is not what you wanted to hear. It is truth though and to say something other would be calloused of me. God bless you. Paul p:s: I left ministry within four years.