right frontal lobe surgery-may have it very soon!

Hi, I am 32 years old I have had seizures sense the age of nine months of age. I have been on dilantin for 31 years and I have had the same problems with the medicine it would work good for a time and then I would have a seizure the next week, the next month and I had a time in my life I would go seizure free for about three and half years. In 1998 I would have a seizure at work for the first time and the manager thought it was from the heat and I would tell her the next day I was just hot and the heat got to me. The manager didn't think much about it, but when I had a seizure six months later on the job I would be told due to my medical problems it would not be safe to continue working there, that was there way of saying get lost. I would continue to have problems at my knew job and a year later I would loose that job will you get the idea. This past year I was put on lamictal 400mg. a day and keppra 2,000mg. a day I have no side affects I feel good and have been seizure free seven months. I saw my neurologist this past april and he wanted me to have the epilepsy monitor with video test so two weeks later I went in the hospital and in two days of being off the medicine I would have nine seizures that was recorded. I would see the neurologist in two weeks and he told me I am canidate for surgery. The reason for my seizures is scar tissue on the right temporal lobe from child birth. I told my doctor that the medicine lamictal and keppra are working good for me and he said in your case it would be like the dilantin it would work for a time and the seizures would return. I was told I have 80 percent chance of never having seizures again so I have decided to put it all on the line for chance of being free of these seizures. My e-mail address is dennis.6461@yahoo.com if you would like to send a message on epilepsy. Take care, Dennis

My sister had a left temporal lobectomy on June 29. She is having terrible issues with pain and is now back in the hospital. Did you have any issues with pain? How long was your recovery?

I JUST TURNED 20 ... I JUST STARTED HAVIN SEIZURES 3 YEARS AGO AND NONE OF THE MEDS ARE WORKING...I AM GOIN TO BE GETTIN THIS SURGERY IN THE NEXT TWO MONTHS AND I AM VERY AFRAID ...AND I HAVE REALLY NO ONE I CAN ASK BOUT IT..LIKE WHAT TO EXCEPT.I DONT KNOW ANYONE WHO HAS SEIZURES .MY FAMILY REALLY DOESNT UNDERSTANDS WHAT IM GOING THROUGH SO WHEN I GET DOWN AND DEPRESSED THEY THINK IM JUST BEING SELFISH.CAN YOU JUST TELL ME WAT I SHOULD EXCEPT?IVE HAD 2 BRAIN SURGERIES BEFORE BUT IT WAS FROM A VESSEL BURSTING.THIS IS GOING TO BE MY FIRST SEIZURE SURGERY.IM ALITTLE AFRAID.IS THE PAIN UNBEARABLE? BY THE WAY I HAVE THE SAME SCAR AS U.SO YOU HAVE A SHUNT?