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right frontal lobe surgery-may have it very soon!

Wed, 04/26/2006 - 22:52
Topic: Surgery and Devices
This ? has been asked before, but I'll try again. not much response to the last person who asked. i guess not many people have frontal lobe surgery. my 25yo daughter may be a good candidate for it. i want to know more about the effects of this surgery on others. she had a brain tumor as a baby and had radiation treatment and surgery at that time. she is cognitively impaired due to above, as well as the epilepsy and high dose meds. we're so worried. it's such a gamble-will her functioning improve or get worse? there will not be a definitive answer to this dilemma, i know. other people's experiences would be helpful. thanks

Comments

Re: I had Right Frontal lobe surgery October 2007

Submitted by SassyMindy on Thu, 2008-06-26 - 20:06
I am having frontal lobe surgery on July 7th...yes this July 7th. Scared out of my mind!!! I am 23 and I have E since 3 yrs old so it's time, however, I am scared. Is there anything anyone advise me doing other then what I have read in this post? . So if you all have suggestions or ideas and Maria ... you pointed out some good questions hopefully Wendy see's your post and is able to answer them for you. Good luck on your decision. Good luck to all those looking into it. And congrats to all those seizure free :) Take care all. 3 Sassy

Re: I had Right Frontal lobe surgery October 2007

Submitted by tan_the_fan on Thu, 2008-08-14 - 21:42

I know this might seem like a crazy notion to some people on here, but to me surgery is not a worry at all... I WANT to have surgery, and I've never wished so hard in my life. Purely because the alternative is just not an alternative for me. I cant drive, I cant cross busy roads by myself and prob not even safe for me to have kids one day... I guess the decision on wether or not to have surgery is a completely personaly choice, but be very serious in considering your alternative choice ie your current situation.

I've just got my paperwork for my final appointments... I have to fly down to Melbourne (AUS) and there I have another MRI, SPECT scan, PET scan & Nuero Pshyc scheduled and then a 2 week Video EEG... my BIGGEST fear is that I dont qualify as a surgery canidate. I seriously dont know what I would do... 

 I have complex partial epilepsy, primarily left, with seconadary generalisation. I have about 2-3 fits a day, most night time or mornings & extreme emotions (when very tired / excited etc). Had anyone else had Right Frontal surgery with a similar diagnoses??

 

 

I know this might seem like a crazy notion to some people on here, but to me surgery is not a worry at all... I WANT to have surgery, and I've never wished so hard in my life. Purely because the alternative is just not an alternative for me. I cant drive, I cant cross busy roads by myself and prob not even safe for me to have kids one day... I guess the decision on wether or not to have surgery is a completely personaly choice, but be very serious in considering your alternative choice ie your current situation.

I've just got my paperwork for my final appointments... I have to fly down to Melbourne (AUS) and there I have another MRI, SPECT scan, PET scan & Nuero Pshyc scheduled and then a 2 week Video EEG... my BIGGEST fear is that I dont qualify as a surgery canidate. I seriously dont know what I would do... 

 I have complex partial epilepsy, primarily left, with seconadary generalisation. I have about 2-3 fits a day, most night time or mornings & extreme emotions (when very tired / excited etc). Had anyone else had Right Frontal surgery with a similar diagnoses??

 

 

Re: I had Right Frontal lobe surgery October 2007

Submitted by mtorsone on Wed, 2008-02-06 - 20:48
Hi... I am also planning to having right frontal lobe surgery come the end of the spring.  I am going to have my second video monitoring test next week in the hospital and then finally my WADA test at the end of the month and then I am all set to make my decision.  I have never been more scared in my entire life.  I forgot to mention I am 25 years old and was only told that I have epilepsy back in 2006 (a few months after I graduated college).  Since then have been on 4 medications and my dr.s as well as my family think that surgery is the option with the best outcome.  Easier for them to say when its not their head.... But anyway... I have read other posts about complications, met with the surgeon I would be using, and now I have read what this posting has to say and I am so confused / scared to commit with a decision.  As much as I want so badly to... that is how scared I am.  Wendy, I would have the same 2 phase surgery you had.    About how long were you in the hospital and about how long until you actually felt like yourself?  You said that your head was oozing, was it easy for it to get infected?  I am nervous for infection.  Weird question... how did you wash your hair?  Face swelling / bruising? Migraines?  I bet a lot of migraines that is a give in.  OK i'm done I promise.  One more... What kind of rehabilitation do they put you through (like do you have to relearn anything or any specific function?)  I know that I may sound like I have so many questions.... it's just reading all of the  different postings is so much to take in. Does anyone else feel as confused / scared about it as me?  Or am I the only one.... Maria

 

 

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