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Vagus Nerve Stimulation Therapy

Tue, 02/01/2005 - 00:45

I am looking for some one that has had the VNS implant procedure done.  My family is considering the procedure for my brother and we would like to speak with someone that has had the procedure done and would be willing to share their success or failure with this device.  We have done much research on the web, however most if not all of the information is provided by Cyberonics who sells the device and physicians who perform the procedure.  Of course the information that we are getting from Cyberonics is that it is the miracle cure for seizures and the physicians only know about "studies".  If there is anyone out there that could share, we would greatly appreciate it.

Best Regards,
Rod

Comments

RE: Vagus Nerve Stimulation Therapy

Submitted by janb on Mon, 2005-03-07 - 14:33

hello, my daughter is 33 yrs old and she has the vns now for 3 yrs,

i cannot see it helping her she still takes more mec than before and she still has seizures every single day sometimes

3 or 4 a day, she was not a canadiate for the surgery and every 3 months we go to the doc and he turn the machine up one more level she is on level 23 now

she also has the voice change and choking feeling

i cant tell a difference in her seizures my self i guess it does some good

she has had seizures now for  19 yrs and she will have them the rest of her life

love a caring mom

hello, my daughter is 33 yrs old and she has the vns now for 3 yrs,

i cannot see it helping her she still takes more mec than before and she still has seizures every single day sometimes

3 or 4 a day, she was not a canadiate for the surgery and every 3 months we go to the doc and he turn the machine up one more level she is on level 23 now

she also has the voice change and choking feeling

i cant tell a difference in her seizures my self i guess it does some good

she has had seizures now for  19 yrs and she will have them the rest of her life

love a caring mom

RE: Vagus Nerve Stimulation Therapy

Submitted by sweet_deeter1 on Mon, 2005-03-07 - 19:51

Hello,

I had the VNS surgery in Oct. 04.  I haven't had much success with it yet.  There hasn't been a reduction in seizures.  The only thing I have noticed is that sometimes when I or someone else uses the magnet it makes the seizures less intense.  When I have grand mals, my postical period usually lasted a long time.  I don't have auras but even with the vns implant it made my postical period not as long.  I go to have the stimulator turned up this month.  I know that my neuro told me that it can take from 3 mo to 1 and a half years to be effective if at all.  I am currently on three meds, Zonegran, Keppra, Depakote ER.  I have complex partial and grand mal seizures.  If you have anymore questions feel free to email me at c.furlin@mchsi.com.  Hope this helps, Candita

Hello,

I had the VNS surgery in Oct. 04.  I haven't had much success with it yet.  There hasn't been a reduction in seizures.  The only thing I have noticed is that sometimes when I or someone else uses the magnet it makes the seizures less intense.  When I have grand mals, my postical period usually lasted a long time.  I don't have auras but even with the vns implant it made my postical period not as long.  I go to have the stimulator turned up this month.  I know that my neuro told me that it can take from 3 mo to 1 and a half years to be effective if at all.  I am currently on three meds, Zonegran, Keppra, Depakote ER.  I have complex partial and grand mal seizures.  If you have anymore questions feel free to email me at c.furlin@mchsi.com.  Hope this helps, Candita

RE: Vagus Nerve Stimulation Therapy

Submitted by angel_lts on Tue, 2005-03-08 - 09:04
I have the implant in 2001. I was in the hospital for a couple of hours and went home. The pain I had, was getting out of bed. My husband would just give me a slight pull. That lasted a week or so and then I was fine. It was on for 10 months and was turned off because of sleep apnea. Which does not happen to often. I am still glad I got it, for I can turn it on when I need it now. The vns is adjusted for it turn on every so many seconds. Depending on how often you have seizures. My voice changed as it would turn on. I think it is best when you have auras for you can turn it on yourself when needed. http://health.groups.yahoo.com/group/EpilepsyApproach/Lisa

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